A kidney disease diagnosis is life-changing. It means undergoing hours-long dialysis treatments several times every week, spending more time at doctors' appointments, and completely overhauling how patients live their lives. The stress of that change is only complicated by the fact that for a lot of dialysis patients, the responsibility for tracking treatments, medications and communicating with their nephrologist and primary care doctor and any number of other care providers so that treatments do not overlap or interfere with each other. Sen. Todd Young has introduced a bill called the BETTER Kidney Care Act, which would make it easier for [...]

Being a nurse practitioner gives me a glimpse into patients’ daily struggles that aren’t always obvious from the outside looking in, like the problems patients face when their coverage suddenly changes, and they can’t afford the medications they need. This is something I’ve particularly noticed for dialysis patients. Since a lot of them rely on Medicare for coverage, they have large out-of-pocket expenses when it doesn’t cover something they need, like actual dialysis treatments (which patients usually need three to four times a week) and medications, since Medicare often only covers 80% of those costs. And since many don’t have [...]

Dialysis has involved a lot of waiting since I started it years ago. Treatments take hours at a time, and I’m left waiting for the call to finally tell me that a donor kidney is ready. It simply cannot come soon enough. However, I at least have coverage for my treatments through my wife’s job, in addition to Medicare, which I know is not the case for others. For them, treatments that aren’t covered by Medicare have to be paid out of pocket, and the added costs and stress can be overwhelming. We need lawmakers to support the Jack Reynolds Memorial [...]

When I first went into the hospital because of a heat stroke a few years ago, I never would’ve imagined it would lead to me starting dialysis. After 19 days in the hospital, I was back just one day after being discharged. Before long, doctors were forced to put me into a medically induced coma while I experienced heart and respiratory failure, which required a tracheostomy to help me breathe. When I came out of the coma, I was already on dialysis. This diagnosis came with expensive new medications, and now I have to work to make sure my cardiologist [...]

Before I was diagnosed with polycystic kidney disease while I was pregnant with my son, I knew nothing about kidney disease. I never would have imagined all the different things that go into treating it, and what it would eventually be like to go on dialysis. Once I did start dialysis in 2016, I found myself in a whole different world. I remember just being overwhelmed learning about it all, and asking myself how I would possibly find a donor as I prepared each day for overnight dialysis treatments that lasted eight and a half hours. What made things especially [...]

It took me two doctors' visits to get a liver transplant. It was a fairly seamless process all things considered, but the medications eventually cost me my only kidney and forced me onto dialysis. Getting a kidney transplant couldn't be more different, Just getting on the list feels like I'm running in circles, with constant tests and never any progress or solution. I've spent years on dialysis, which has changed my life drastically and even cost me a job I loved because I couldn't travel as much anymore. Dialysis isn't just difficult because of the long hours in the chair, [...]

I’ve battled kidney disease for over half my life, experiencing one failed kidney transplant and 16 years on dialysis — all before my 30th birthday. Fortunately, I’m able to receive full coverage for the cost of the treatments and medications I need to fight my kidney disease. However, I know there are other patients out there who can’t say the same thing. Many dialysis patients struggle to afford the basic care they need since Medicare doesn’t always cover the cost of the treatments and medications needed to fight kidney disease for patients who are under the age of 65. Luckily, [...]