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New Bill Would Help Struggling Dialysis Patients

2024-03-29T01:12:02+00:00September 30th, 2020|Categories: Care Coordination, Patient's Voice, Spotlight|

By Dortha Pugh-Thompson, DPC Patient Ambassador When my doctor told me I had kidney disease, I wasn’t aware of just how serious it was. Two years later, though, I passed out and woke up in the emergency room, where doctors said I was experiencing both kidney failure and heart failure. Shortly after, I started dialysis. Fortunately, I was able to do in-home dialysis and remain active in my community and my church. Now, even after receiving a transplant, I’ve found my calling as an advocate for dialysis patients, and I am passionate about helping others through their treatments. ​Over the [...]

Mark Your Calendar for our September Patient Ambassador Call

2024-03-29T01:12:03+00:00August 25th, 2020|Categories: Article, Patient Ambassadors, Take Action|

Please join us early next month for our next Patient Ambassador call: Engaging with Elected Officials on Social Media During a Pandemic. Learn tips about what you can do to elevate your voice online. Please RSVP to let us know you can attend the call. Call Details are below: Date: Thursday, September 3, 2020 Time: 2:00 PM ET, 1:00 PM CT, 12:00 PM MT, 11:00 AM PT Follow these instructions at the time of the call: Call: 1-877-399-5186 Enter Meeting Code: 269 743 2061 Join Online (optional): https://dialysispatients.adobeconnect.com/advocacy/ Thank you for helping to improve the quality of life for dialysis patients [...]

The Coronavirus Outbreak Puts Dialysis Patients At Risk

2024-03-29T01:12:03+00:00August 14th, 2020|Categories: Care Coordination, Patient's Voice, Spotlight|Tags: |

Jeff Needham turned his lifestyle around with diet and exercise after he was diagnosed with kidney disease. A true inspiration, Needham competed in two Olympic distance triathlon relays, as well as a three-day, 230-mile cycling ride, in support of a better health care system. In addition, Needham warns about the increased dangers of COVID-19 for dialysis patients and highlights the benefits of participating in a coordinated care pilot program.

DPC’s 2020 Annual Membership Survey is Live!

2024-03-29T01:12:03+00:00August 6th, 2020|Categories: 5-Star Ratings, Access to Transplant, Article, Care Coordination, Charitable Premium Assistance, Dental Coverage, Dialysis Funding, Get Involved, Immunosuppressive Drug Coverage, Innovation, Medicaid, Medicare Advantage, Medigap Coverage, Quality Incentive Program, Take Action, Transplant Donor Protection, Transportation Services, Treatment Options|Tags: |

Elevate the Voice of Patients with Kidney Disease and Their Caregivers Our 2020 Annual Membership Survey is live, and it will remain open until Friday, August 21. We are counting on your participation, as patient feedback helps to shape our public policy agenda and patient education priorities for the next year. This year we ask that both patients and caregivers take our survey. Rest assured your responses will remain completely anonymous. We only share the overall survey results with state and federal level policy makers, so they will better understand your needs, experiences, and preferences. Your feedback is crucial. Therefore, we will [...]

Care Coordination Fixes One of the Biggest Flaws in the American Health Care System

2024-03-29T01:12:04+00:00July 20th, 2020|Categories: Care Coordination, Patient's Voice, Spotlight|

Gloria Rohrer lost a leg after needing multiple surgeries when her kidney transplant failed. Rohrer later lost her eyesight in one eye while vacationing in Florida, which could have been avoided with proper care coordination. She could have shut down and become angry with the world, instead Rohrer became a stalwart advocate for patient access to care coordination services, so that others can avoid similar complications.

Advocacy Day Application Deadline Extended 1 Week

2024-03-29T01:13:32+00:00December 14th, 2019|Categories: Article, Get Involved, Take Action|

Good news—the deadline to apply for DPC's 2020 Advocacy Day in Washington, DC has been extended one week to Friday, December 20! We want to elevate the patient voice with policy makers with a strong and united group of advocates from all 50 states. Become a leader in your community by applying, and you could be the voice for dialysis patients with your state lawmakers in our nation’s capital.  We understand that the holidays are an especially busy time of year for many people, and we hope you will take some time in the next week to elevate the patient [...]

DPC’s Advocacy Day Application is OPEN! Apply by December 13, 2019

2024-03-29T01:13:33+00:00November 13th, 2019|Categories: Article, Get Involved, Take Action|

DPC is pleased to invite you to apply for our 2020 Advocacy Day! We are very fortunate that we are able to bring dialysis patients to Washington, D.C. each year to meet with their elected officials. This provides advocates like you with the unique opportunity to make your voice heard on behalf of dialysis patients from your state in order to improve dialysis care. Next year is no exception. We will meet with Members of Congress and their staff on Tuesday, June 2, 2020 with a comprehensive training the day before. We received over 100 applicants for our 2019 Advocacy Day, [...]

Meet our Newest Board Members and Get Site Visit Tips During November’s Patient Ambassador Call

2024-03-29T01:13:33+00:00October 24th, 2019|Categories: Article, Get Involved, Take Action|

Join us next month on November 14 at 2:00 pm ET for our upcoming Patient Ambassador call. We will be introducing our newest Board members and discussing strategies for scheduling a facility tour with your lawmaker. Please RSVP to let us know you can attend the call. Check out our accompanying handout for this call. Learn more about our Patient Ambassador program. Call Details are below: Date: Thursday, November 14, 2019 Time: 2:00 PM ET, 1:00 PM CT, 12:00 PM MT, 11:00 AM PT Follow these instructions at the time of the call: Call: 1-877-399-5186 Enter Meeting Code: 269 743 2061 Join Online (optional): https://dialysispatients.adobeconnect.com/patient-ambassador-call/ Thank [...]

Advocacy Day application deadline is THURSDAY

2024-03-29T01:13:35+00:00February 25th, 2019|Categories: Article, Get Involved|

As a reminder, the Advocacy Day application deadline is Thursday, February 28. If you haven't already applied, please consider doing so. We are very fortunate that we are able to bring dialysis patients to Washington, D.C. each year to meet with their elected officials. This provides advocates like you with the unique opportunity to make your voice heard on behalf of dialysis patients from your state in order to improve dialysis care. This year is no exception. We will meet with Members of Congress and their staff on Tuesday, June 11, 2019 with a comprehensive training the day before. Last year [...]

Become a Member of DPC and Save on Top Brands

2024-03-29T01:13:36+00:00January 2nd, 2019|Categories: About DPC, Article, Get Involved|

Treat yourself this year with the gift of free DPC membership. One of the perks we offer our members is discounts on top brands. If you are planning to purchase a computer, rent a car, move to a new home, ship a package, print materials or buy office supplies, you could benefit from DPC membership. Become a member and join almost 40,000 patients, family members, health professionals and friends that help to elevate the voice of individuals with chronic kidney disease. Join Dialysis Patient Citizens.

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