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DPC’s 2024 Advocacy Day

2024-05-23T14:34:34+00:00May 20th, 2024|Categories: Advance Patient Choice, Article, Get Involved, Improve Access to Care, Increase Quality of Care, Medigap Coverage, News, Patient Ambassadors, Private Insurance Coverage, Promote Financial Security, Protect Patient Care|

Earlier this month, DPC hosted our annual Advocacy Day in Washington, D.C. where we bring together patients, family members, and care givers to meet with their Members of Congress to elevate the patient story for dialysis patients. This year we had 65 advocates attend, representing 25 states, who had almost 80 Congressional meetings. Our patients spoke to Congressional offices asking them to support H.R. 6860 – The Restore Protections for Dialysis Patients Act and H.R. 5027 – The Chronic Kidney Disease Improvement in Research and Treatment Act. These two bills would allow dialysis patients access to private insurance and Medigap [...]

Help dialysis patients

2024-06-27T14:47:14+00:00May 7th, 2024|Categories: Patient Stories in the News, Private Insurance Coverage, Spotlight|

End Stage Renal Disease (ESRD), commonly called kidney failure, changed my life. I was first diagnosed with kidney disease in 2014, and my kidneys totally failed in 2020 after a battle with covid-19. I relied on dialysis, the treatment which replaced my kidneys' blood-filtering function, from 2020 until August of 2023 when I received a kidney transplant. As an ESRD patient advocate lucky enough to have received a transplant, I feel obligated to call on Congressman French Hill to help future dialysis patients afford lifesaving dialysis care. He can do so by supporting the Restore Protections for Dialysis Patients Act. [...]

Congress must not leave kidney patients behind

2024-06-27T14:47:01+00:00April 9th, 2024|Categories: Featured Spotlight, Patient Stories in the News, Private Insurance Coverage, Spotlight|

I have chronic kidney disease. Thankfully, my kidneys are still functioning, but they are at risk of failure any time. I became a dialysis patient advocate because I may eventually have to withstand the difficulties that come with dialysis in America. I am fighting for my future and for the future of all dialysis patients in America. I am concerned with a recent Supreme Court decision that allows private insurers to essentially push new dialysis patients off of their private insurance and onto Medicare soon after beginning treatment. This puts the health and well-being of those already fighting a monumental battle at [...]

DPC Celebrates 20th Anniversary

2024-04-24T16:16:22+00:00April 1st, 2024|Categories: About DPC, Advance Patient Choice, Article, Get Involved, Improve Access to Care, Increase Quality of Care, Patient Ambassadors, Promote Financial Security, Protect Patient Care|

Since our founding 20 years ago, Dialysis Patient Citizens (DPC) has had the privilege of working with amazing advocates to help elevate the patient voice with policy makers to improve their quality of life. At our upcoming Advocacy Day Conference, May 5 – 7, 2024, we are excited to: honor the incredible work of our patient advocates; thank key Congressional Champions; and recognize some of our kidney community allies. Advocates from across the country will also take their stories to Capitol Hill to advocate for additional patient protections. To all of our patient advocates, family members, care partners, and kidney community [...]

DPC Advocates Make Their Voices Heard!

2024-03-29T01:09:11+00:00February 21st, 2024|Categories: Article, Get Involved, Patient Ambassadors, Patient Stories in the News, Patient's Voice, Private Insurance Coverage, Promote Financial Security, Take Action|

DPC’s patient advocates are working hard to make their voices heard through media outreach, by sharing their stories through op-eds and letters to the editor. Coast to coast, patients are letting their local legislators know about the issues that are important to them, and how their votes in Congress affect their lives. Check out the amazing work of our advocates, and if you’re feeling inspired, we encourage you get involved! Learn to how to become a Patient Ambassador and other ways DPC can help you make your voice heard.

Letters: Dialysis patients need protections

2024-04-24T16:17:55+00:00February 15th, 2024|Categories: Patient Ambassadors, Patient Stories in the News, Private Insurance Coverage, Spotlight|

Dialysis patients often open the mail to find thousands of dollars worth of medical bills they can’t afford. Without the proper insurance, affording dialysis treatment is all but impossible. I began dialysis back in college, so at the time, I took advantage of my mother’s private insurance to cover costs. However, I was kicked off of my mother’s insurance at 26 years old without yet qualifying for Medicare. Suddenly losing private insurance caused significant stress and anxiety in my life, and I know patients who want to quit dialysis because of financial stress. Therefore, I am particularly concerned with a [...]

DPC Recognizes Patients and Dialysis Staff as Part of its 20th Anniversary Celebration

2024-03-29T01:09:12+00:00February 14th, 2024|Categories: Advance Patient Choice, Article, Get Involved, Improve Access to Care, Increase Quality of Care, Patient Ambassadors, Promote Financial Security|

In January, DPC kicked off a year-long 20th Anniversary celebration by recognizing one of our outstanding patient advocates, and thanked dialysis facility staff who go above “the extra mile” to provide exceptional care, even in the face of recent staffing shortages. Gene Blankenship was the recipient of DPC’s inaugural Patient Advocacy Champion Award for his work in advocating for dialysis patients with his elected officials. DPC also awarded its inaugural Dialysis Dynamo awards to Amanda Byrd, AA/CCHT, Alicia Caldwell, RN, CDN, Sean Scearce, PA, and Marcy Stites, RN, for their hard work providing 5-star quality care for an underserved, rural community [...]

Restore hope to dialysis patients

2024-03-29T01:09:12+00:00February 10th, 2024|Categories: Patient Stories in the News, Private Insurance Coverage, Spotlight|

Last year, I wrote to you about my journey as a kidney patient after my diagnosis in 2017 and I’m writing to you again to call on Congresswoman Stephanie Bice to protect kidney patients like me. Recently, a ruling the U.S. Supreme Court made weakens protections for dialysis patients by allowing private insurance to lessen coverage and force patients onto Medicare before the traditional 30-month grace period. The problem is Medicare only covers 80% of a dialysis patient’s bill, including mine. Luckily, I’m able to continue working, but I have to fight tooth-and-nail to pay my bills. Although I can [...]

2024 Advocacy Day – 24 Hours Left to Apply!

2024-03-29T01:09:12+00:00January 25th, 2024|Categories: Advance Patient Choice, Article, Get Involved, Improve Access to Care, Increase Quality of Care, Patient Ambassadors, Policy Issues, Promote Financial Security, Protect Patient Care, Take Action|

Dialysis Patient Citizens (DPC) will host our 20th Anniversary Celebration and Annual Congressional Advocacy Day May 6-7, 2024. Participants will be selected based on the quality of their applications, legislative priorities, and previous involvement in DPC's advocacy efforts. We will hold a training session ahead of our congressional meeting for those participating to explain the process and review our current legislative “asks.” The application period is open until January 26, 2024. We just ask that you tell us a little about yourself and why you think you would be a good candidate for this incredible opportunity. We will make a decision [...]

Letter: Protect NH dialysis patients

2024-05-23T14:18:01+00:00January 22nd, 2024|Categories: Patient Ambassadors, Patient Stories in the News, Private Insurance Coverage, Spotlight|

Protect dialysis access To the Editor: All dialysis patients are required to have Medicare as their primary insurer after 30 months from when they start dialysis, but the law has always allowed us to keep our private insurance until then if we wanted. Now, a Supreme Court decision from 2022 may allow private insurers to reduce coverage of many life-saving dialysis services. Keeping coverage after starting dialysis provides stability during a very difficult time. After this ruling, dialysis patients may have to worry about the hassle of switching to Medicare at the same time they worry about starting dialysis. The [...]

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