I remember being diagnosed with kidney disease in 2012 and beginning peritoneal dialysis in 2014. It was an undoubtedly difficult period in my life. Fortunately, I could continue working full time, which allowed me to keep my private insurance. Although Medicare became my primary plan, my private insurance covered 20% of the bill that Medicare did not. My private insurance also broadened my access to treatments and medications. Most patients on dialysis are not well enough to continue working and rely entirely on public assistance. Patients must pay 20% of the bill in states without an affordable Medigap plan to [...]

Like over 91,000 Californians, my father suffers from end stage renal disease — kidney failure, or ESRD. My father has been receiving dialysis, the only treatment for ESRD besides a kidney transplant, for over 18 years. Dialysis is a life-consuming, exhausting treatment, but it keeps my father alive. I have served as my father’s part-time caregiver during these years. Unfortunately, many dialysis patients struggle with their healthcare expenses. Many rely on their employer-provided private insurance, especially during the first months of care, but dialysis treatment can make it very challenging to continue working. Since most receive their diagnosis unexpectedly, having that insurance [...]

At 22, while serving in the Army National Guard, I discovered I had a hereditary immune disease called IgA nephropathy affecting my kidneys. When I turned 50, my kidneys finally began to fail. I then entered end-stage renal disease (ESRD) and began dialysis, which removes waste from the blood when the kidneys can't. Dialysis has been a part of my life ever since. My father and grandfather both suffered from ESRD. Losing my father to the disease last November was tragic, especially as I battled the disease myself, but it inspired me to become an advocate for policies protecting kidney [...]