At Last, A Shorter Patient Experience Survey Comes Out This Spring!

2026-04-20T15:03:09+00:00April 20th, 2026|Categories: Advance Patient Choice, Article, Improve Access to Care, Increase Quality of Care, News|

By Alethea Walls, DPC Board of Directors Medicare’s In-Center Hemodialysis CAHPS (ICH CAHPS) Survey is one of the most meaningful tools patients have to share their experiences and influence improvements in dialysis care. We’re pleased to report that beginning with the next survey round, the questionnaire has been shortened to 39 questions, reducing the length of the old survey by 23 questions. For years, DPC has pointed out to Medicare officials the burden to dialysis patients of this survey. When Medicare surveys health plan enrollees or hospital patients about their satisfaction, they are able to use small samples of large populations. [...]

Federal Court Strikes Down Attempt to Abolish Charitable Premium Assistance for Dialysis Patients

2026-04-20T15:00:27+00:00April 14th, 2026|Categories: Article, Charitable Premium Assistance, Legal Defense, News, Promote Financial Security, Protect Patient Care|

Several years ago, at the behest of the SEIU labor union, the California legislature passed Assembly Bill 290 (AB 290), a bill intended to abolish charitable premium assistance for dialysis patients. In an April 7, 2026, decision, the U.S. Court of Appeals for the Ninth Circuit struck down major provisions of AB 290. The court ruled that the law violated the First Amendment rights of dialysis providers and the American Kidney Fund (AKF), a nonprofit charity. The Ninth Circuit found that AB 290's primary provisions unconstitutionally burdened the right of expressive association. The court struck down the provision that capped reimbursement [...]

Proposed legislation would keep dialysis patients connected to care

2026-04-13T19:48:34+00:00April 13th, 2026|Categories: Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Promote Financial Security, Spotlight|

As someone who has been on dialysis for over two decades, I know that access to consistent, affordable care is not optional; it's life or death. Kidney disease almost cost me my life. I spend over a month in the hospital when I was first diagnosed, and dialysis is what allowed me to rebuild my strength and survive. A previous kidney transplant eventually failed, and today I'm back on dialysis and at the top of Colorado's transplant list. Dialysis takes a massive physical and mental toll. Some days, simply getting through treatment feels like a full-time job. Despite the challenges, [...]

Improving Kidney Health Hearing

2026-03-25T18:42:19+00:00March 25th, 2026|Categories: Article, Increase Quality of Care, Innovation, News, Private Insurance Coverage, Promote Financial Security, Protect Patient Care|

Last week, The Ways and Means Subcommittee on Health held a hearing on “Improving Kidney Health Through Better Prevention and Innovative Treatment”. Witnesses included Ashli Littleton, a 36-year-old Medicare beneficiary with ESRD; Suzanne Watnick, MD FASN, a nephrologist and Professor of Medicine in the Division of Nephrology at the University of Washington; Robert Taylor, MD, a nephrologist and Chief Medical Officer of Dialysis Clinic, Inc.; and John Butler, MBA, President and Chief Executive Officer of Akebia since 2013. During the hearing, the witnesses and Members of Congress highlighted many of the struggles ESRD patients face and the need for more innovation [...]

Letter: Protect dialysis coverage

2026-04-20T14:51:23+00:00March 17th, 2026|Categories: Featured Spotlight, Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Promote Financial Security, Spotlight|

Since coming to Congress, Rep. Marie Gluesenkamp Perez, D-Skamania, has worked across party lines to help our community. I hope she’ll do so again by helping ensure that Washington’s kidney disease patients, of which I am one, don’t go into financial ruin. After a recent Supreme Court ruling, private insurance companies are now able to push dialysis patients off their coverage and onto Medicare prematurely. Previously, if someone had private insurance when they got diagnosed with kidney failure and started dialysis, they could keep their full coverage for up to 30 months. This ensured that patients could focus on starting [...]

Letter: Utah lawmakers must ensure that life-saving care is affordable and accessible. Expanding access to Medigap plans is crucial

2026-04-20T14:51:26+00:00March 10th, 2026|Categories: Medigap Coverage, Patient Ambassadors, Patient Stories in the News, Promote Financial Security, Spotlight|

In 2009, I was diagnosed with kidney failure. My condition deteriorated so quickly that I was life-flighted and placed in a medically induced coma for 10 days. When I woke up, I had to relearn how to walk and soon began dialysis. My kidneys briefly recovered, but in 2014 they failed again. After spending four years navigating the transplant waitlist, I was fortunate enough to receive a kidney in October 2018 at the University of Utah Hospital. I was able to move forward with transplantation only because I had Medicare during dialysis and later had access to my spouse’s employer-sponsored [...]

Support S.1552/H.R. 4583 – The Living Donor Protection Act

2026-02-26T14:36:14+00:00February 25th, 2026|Categories: Access to Transplant, Advance Patient Choice, Article, Protect Patient Care, Take Action, Transplant Donor Protection|

This week, The Senate Committee on Health, Education, Labor and Pensions (HELP) will be marking up S. 1552 – The Living Donor Protection Act introduced by Senators Tom Cotton (R‑AR) and Kirsten Gillibrand (D‑NY).  This bill, and its’ House companion bill H.R. 4583, provides essential protections for living kidney donors, including job security, protection from insurance discrimination, and the financial burdens associated with transplantation. Specifically, The Living Donor Protection Act would: Prohibit life, disability, and long-term care insurance companies from denying or limiting coverage and from charging higher premiums for living organ donors. Amend the Family and Medical Leave Act of 1993 to specifically include [...]

Mother urges Congress to protect access to kidney care

2026-02-18T21:01:26+00:00February 17th, 2026|Categories: Increase Quality of Care, Innovation, Patient Ambassadors, Patient Stories in the News|

My daughter, Diana, passed away at 45 due to complications from kidney failure. Diagnosed with Type 1 diabetes at age 6, she later showed signs of kidney disease and needed dialysis for more than two years. Diana received two kidney transplants. The first, in 2008, was a gift from her aunt. We were fortunate that the transplant costs were covered. Without that support, too many living donor transplants are denied because of insurance barriers. In 2018, Diana was placed on the transplant list, and just one week later, she received a perfect match. Still, her challenges didn’t end there. A [...]

One Week Left to Apply – 2026 Advocacy Day

2026-01-21T19:32:39+00:00January 21st, 2026|Categories: Article, Get Involved, Improve Access to Care, Increase Quality of Care, Policy Issues, Promote Financial Security, Protect Patient Care|

Applications for DPC’s 2026 Advocacy Day are due next Friday, January 30th! Be sure to submit your application for a chance to come to Washington, D.C., June 29 – 30, 2026, and speak with your members of Congress about important pieces of legislation that will help improve the lives of kidney patients. Participants will be selected based on the quality of their application, legislative priorities, and previous involvement in DPC's advocacy efforts. We will hold a training session ahead of our advocacy day for those participating to explain the process and review the legislation. If you are interested, please complete the [...]

Open Enrollment Deadlines for Texas Dialysis Patients

2026-01-21T19:35:03+00:00January 12th, 2026|Categories: Article, Medicare Advantage, Medigap Coverage, State Advocacy|

In a major victory for under age 65 Texans living on dialysis, House Bill 2516 became law in 2025. HB 2516 provides access for under-age 65 dialysis patients to purchase affordable Medigap insurance plans A, B and D at the same premium rate as those who are age 65. The remaining Medigap lettered plans are available at 200% of the age 65 premium. This legislation impacts not only individuals who have just started dialysis and enrolled in Medicare Part B, but it also includes a one-time, 6-month open enrollment window for dialysis patients who are already enrolled in Medicare Part B. This [...]

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