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DPC Urges CMS to Prioritize Patient Access

2024-03-29T01:50:30+00:00January 19th, 2016|Categories: Access to Transplant, Care Coordination, Charitable Premium Assistance, Medicare Advantage, Medigap Coverage, Transportation Services|Tags: |

Last month, DPC sent a letter commenting on the “Notice of Benefit and Payment Parameters for 2017” proposed rule. This annual rule by the Centers for Medicare and Medicaid Services (CMS) contains proposed changes to the exchange plan coverage of the Affordable Care Act. DPC’s letter focuses on the importance of insurance coverage and network quality for end-stage renal disease (ESRD) patients. One issue the letter comments on pertains to network adequacy. Network adequacy describes an insurance plan’s ability to provide a sufficient amount of in-network providers to subscribers in the plan. Suggestions to improve network adequacy include requiring all [...]

RE: CMS–9937–P: Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2017

2024-03-29T01:50:31+00:00December 21st, 2015|Categories: Advance Patient Choice, Charitable Premium Assistance, Comment Letter, Improve Access to Care|Tags: |

Andrew Slavitt Acting AdministratorCenters for Medicare and Medicaid Services 7500 Security BoulevardBaltimore, MD 21244RE: CMS–9937–P: Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2017Dear Acting Administrator Slavitt,On behalf of the more than 430,000 patients who rely upon dialysis services, we appreciate the opportunity to comment on the “Patient Protection and Affordable Care Act; HHS Notice of Benefit and Payment Parameters for 2017” Proposed Rule (Proposed Rule). We strongly encourage the Centers for Medicare and Medicaid Services (CMS) to protect the rights of all Americans to access coverage in the Marketplaces, consistent with the Affordable Care [...]

Medicaid-Eligible Dialysis Patients Not Fully Informed of Treatment Options, Survey Finds

2024-03-29T01:50:31+00:00December 11th, 2015|Categories: Article, Medicaid, Treatment Options|

End-stage renal disease (ESRD) patients who receive Medicaid are less likely to be informed of home modality and transplantation options than patients covered by Medicare or commercial insurance, according to survey research DPC released earlier this month. DPC recently partnered with Baxter to facilitate a panel discussing these disparities at the National Black Caucus of State Legislators (NBCSL) Conference in Los Angeles, California. The DPC survey found that while about 74 percent of ESRD patients overall are informed about the option of home hemodialysis, there is an information gap of 17 percentage points between patients covered by Medicare (77%) and Medicaid [...]

RE: CMS-1631-P: Physician Fee Schedule

2024-03-29T01:50:32+00:00August 25th, 2015|Categories: Comment Letter, Immunosuppressive Drug Coverage|

August 25, 2015 Andrew Slavitt, Acting Administrator Centers for Medicare and Medicaid Services Department of Health and Human Services Hubert H. Humphrey Building 200 Independence Avenue SW Washington, D.C. 20201 Dear Mr. Slavitt, Dialysis Patient Citizens (DPC) appreciates the opportunity to provide the Centers for Medicare and Medicaid Services (CMS) with comments on the proposed payment rule for the Medicare End Stage Renal Disease (ESRD) program. As America’s largest patient-led organization representing dialysis patients, DPC’s membership consists of more than 28,000 dialysis and pre-dialysis patients and their families. We seek to ensure the patient point of view is considered by [...]

JAMA Study Examines Obstacles Preventing Kidney Transplants

2024-03-29T01:50:32+00:00August 14th, 2015|Categories: Access to Transplant, Article|

It is well known that the best treatment for end-stage renal disease patients is a kidney transplant. While there are many health factors that affect a patients’ ability to receive a transplant, a recent study found that only 28 percent of adult patients beginning dialysis were even referred for kidney transplant evaluations. The study, published in the Journal of American Medical Association, examined 15,000 patients within Georgia’s three transplant centers. Referral rates varied from 0% to 75% in some dialysis facilities. Researchers found that facilities with the lowest referral rate were “likely to be nonprofit, hospital-based, have more patients, treat patients [...]

DPC Board Members to Serve on Three Technical Expert Panels

2024-03-29T01:50:33+00:00April 7th, 2015|Categories: 5-Star Ratings, Access to Transplant, Treatment Options|

The Centers for Medicare and Medicaid Services (CMS) regularly schedules technical expert panels (TEPs) to advise the agency on quality measures. In the words of CMS, a TEP is “a group of stakeholders and experts who provide technical input…on the development, selection, and maintenance of measures for which CMS contractors are responsible.” CMS is contracting with the University of Michigan Kidney Epidemiology and Cost Center (UM-KECC) to host a TEP on the Dialysis Facility Compare star rating system. While the complete roster of participants is not public yet, we are pleased to announce that DPC Interim President Jack Reynolds was selected [...]

DPC to Host Regional Meetings

2024-03-29T02:08:04+00:00September 3rd, 2014|Categories: Article, State Advocacy, Treatment Options|

DPC is excited to announce the beginning of a new program to further engage kidney disease patients through education and advocacy. For the first time ever, DPC is hosting four regional meetings in sites around the country to bring dialysis patients together to engage on issues important to their care and well-being. The inaugural locations for these regional meetings are as follows: Detroit, Michigan; Seattle, Washington; Houston, Texas and New York, New York. We have partnered with the American Psychological Association to provide an informative and engaging session on the importance of having good mental health as a kidney disease [...]

Kidney Care Bill Introduced in U.S. House of Representatives

2024-03-29T02:08:05+00:00June 30th, 2014|Categories: Article, Care Coordination, Medicare Advantage, Treatment Options|

Congressmen John Lewis (D-GA) and Tom Marino (R-PA) have introduced the Chronic Kidney Disease Improvement in Research and Treatment Act in the U.S. House of Representatives. Lewis and Marino are leaders on the Congressional Kidney Caucus and have been staunch supporters of dialysis patients over the years. This bill seeks to advance several proactive kidney care policy initiatives and provides a vehicle for educating Members of Congress and the public about the issues facing kidney disease patients and the kidney community as a whole. The bill would: Improve understanding of kidney disease: The legislation seeks to identify the gaps in critical [...]

Dialysis Reimbursements Stabilized by Protecting Access to Medicare Act

2024-03-29T02:08:06+00:00April 2nd, 2014|Categories: Article, Dialysis Funding, Immunosuppressive Drug Coverage|

This week President Obama signed the Protecting Access to Medicare Act, which contained some provisions favorable to dialysis patients. The primary purpose of the legislation was to stabilize Medicare payments to physicians, but Congress also used the opportunity to stabilize reimbursements to dialysis facilities. A large cut that had been scheduled to take effect in 2016 has been replaced by smaller, fixed-amount cuts that afford providers more certainty about revenues in coming years. This new payment formula will encourage providers to renew expiring leases on dialysis facilities and continue to invest in improved kidney care infrastructure. Another provision further delays addition [...]

DPC Urges Medicare Agency to Withdraw Proposal That Could Weaken Protections for Transplant Patients

2024-03-29T02:08:06+00:00March 6th, 2014|Categories: Access to Transplant, Article, Comment Letter, Immunosuppressive Drug Coverage, Improve Access to Care|

Dialysis Patient Citizens (DPC) weighed in against a Medicare proposal that would complicate some transplant patients’ access to immunosuppressive drugs. Medicare Part D, like other private health plans, uses drug formularies to keep down costs. Formularies favor certain drugs over others in exchange for discounts. Patients are encouraged to ask their doctors to first prescribe medications on the formulary to take advantage of lower co-pays. Often a patient’s condition can be addressed by a drug on the formulary, but many transplant patients find that “first-line” immunosuppressive treatments aren’t effective or have serious side-effects. For this reason, DPC told CMS: “Immunosuppressive [...]

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