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HOPE Act Moves to White House to be Signed into Law

2024-03-29T02:08:08+00:00November 13th, 2013|Categories: Access to Transplant, Article|Tags: |

The U.S. Congress took an important step Tuesday evening with House passage of the HIV Organ Policy Equity (HOPE) Act, which will allow research on donation of organs from deceased HIV-infected donors to HIV-infected recipients. Having been passed by the Senate in June, the bill is now positioned to move to the White House to be signed into law. The HOPE Act modernizes outdated federal law to reflect the current medical understanding of HIV infection and to allow for scientific research. For patients living with HIV, deceased donors with the same infection represent a unique source of organs. Passage of [...]

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Promoting Care Coordination for Dialysis Patients

2024-03-29T02:08:08+00:00October 10th, 2013|Categories: Advance Patient Choice, Article, Care Coordination|

Federal policymakers have long grappled with the problem of better coordinating care for Medicare beneficiaries. As the Medicare Payment Advisory Commission has noted, "Gaps exist in care coordination in fee-for-service Medicare because of the fragmentation of service delivery, the lack of tools to help communicate across settings or providers, and the lack of a financial incentive to coordinate care." Part of the problem is that the Original, or fee-for-service, Medicare largely froze in place mainstream medical and insurance practices as they stood in 1965, when the program was created. Many health policy thought-leaders believe that the problem of uncoordinated care has been [...]

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OPTN/UNOS Approves New Deceased Donor Kidney Allocation Policy

2024-03-29T02:08:57+00:00July 19th, 2013|Categories: Access to Transplant, Article|

The Organ Procurement and Transplantation Network (OPTN) and the United Network for Organ Sharing (UNOS) board approved a new kidney allocation policy that will substantially change the way deceased donor kidneys are distributed. Many components of the policy will benefit dialysis patients greatly. For example, measuring wait times from the initiation of dialysis will improve access to transplants for those patients who do not receive crucial kidney transplant education. The prior system measured wait times from when the patient signed up for a transplant. The new system will help those who are on dialysis longer get transplants sooner. DPC also supports improving [...]

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Dialysis Advocates Praise Introduction of Kidney Transplant Drug Access Legislation

2024-03-29T02:08:59+00:00March 28th, 2013|Categories: Access to Transplant, Immunosuppressive Drug Coverage, Press Release|

Urge Support for the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2013 (Washington, DC) – In honor of National Kidney Month, dialysis patient advocates praised the introduction of the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2013 (S.323/H.R. 1325). This vital legislation will extend anti-rejection drug coverage for kidney transplant patients under the age of 65 beyond the current three year period. The bill would ensure transplant patients receive the necessary medications to maximize the life of the donated organ while using our limited federal resources more efficiently. “While receiving a kidney transplant is a [...]

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Congressional Corner: Two Transplant Bills Introduced in Congress

2024-03-29T02:08:59+00:00March 22nd, 2013|Categories: Access to Transplant, Immunosuppressive Drug Coverage, Improve Access to Care|Tags: |

By Carrie L., Director of Congressional and State Relations Recently, two bills relating to kidney and organ transplants have been introduced in Congress. Senator Richard Durbin of Illinois and Senator Thad Cochran of Mississippi introduced the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2013 (S. 323) in the Senate, and Congressman Michael Burgess and Congressman Ron Kind introduced a companion bill (H.R. 1325) in the House. If passed, these bills will extend Medicare immunosuppressive drug coverage for kidney transplant patients under 65 years old for the life of the graft. Under current law, Medicare beneficiaries who are [...]

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Congressional Corner: Over the Cliff – Then Quickly Back Up Again

2024-03-29T02:09:00+00:00January 3rd, 2013|Categories: Blog, Immunosuppressive Drug Coverage, Transportation Services|

By Carrie L., Director of Congressional and State Relations Well, we went over the fiscal cliff. And then, just hours later a deal was struck, a few hours late but a deal to bring us back from the brink nonetheless. The 112th Congress concluded its tumultuous, and gridlocked 2 years by passing a deal to avoid massive tax hikes for the middle class and a 27% decrease in payments to Medicare providers on New Year’s Day. Unfortunately, cuts to the Medicare ESRD program were still included in the fiscal cliff package. The deal calls on the Centers for Medicare and Medicaid [...]

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Congressional Corner: A Year of DPC Advocacy Successes!

2024-03-29T02:09:00+00:00December 12th, 2012|Categories: Immunosuppressive Drug Coverage, Medicaid, State Advocacy, Transportation Services|Tags: , |

By Carrie L., Director of Congressional and State Relations As 2012 comes to an end, DPC has a lot to celebrate and a lot to look forward to. DPC staff and most importantly our members, have achieved so much this year, bringing awareness to kidney disease issues both in Congress and in their communities! Patient Ambassadors held dozens of kidney and dialysis awareness events across the country in support of World Kidney Day and other events throughout the year. Patient Ambassadors taught members of their churches and civic organizations as well as youth in schools about the importance of keeping your [...]

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