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Bipartisan, Bicameral Members of Congress Urge Biden Administration to Finalize Organ Procurement Reforms

2024-03-29T01:12:00+00:00March 16th, 2021|Categories: Access to Transplant, Article|

A coalition of congressional leaders from the Senate Committee on Finance and the House Committee on Oversight and Reform today urged the Biden administration to finalize a rule to reform the organ procurement system in the United States. The letter, sent to Acting Health and Human Services (HHS) Secretary Norris Cochran was signed by Senate Finance Committee Chair Ron Wyden, D-Ore.; Senators Chuck Grassley, R-Iowa, Ben Cardin, D-Md., and Todd Young, R-Ind.; House Committee on Oversight and Reform (COR) Committee Chairwoman Carolyn B. Maloney, D-N.Y., and Ranking Member James Comer, R-Ky.; House COR Economic and Consumer Policy Subcommittee Chair Raja Krishnamoorthi, [...]

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DPC’s Letter to Elizabeth Fowler, Deputy Administrator for CMMI

2024-03-29T01:12:00+00:00March 8th, 2021|Categories: Advance Patient Choice, Improve Access to Care, Increase Quality of Care, Medicare Advantage|

Ms. Elizabeth Fowler, Deputy Administrator Center for Medicare and Medicaid Innovation 2810 Lord Baltimore Drive Windsor Mill, MD 21244. Dear Ms. Fowler: We are seeking a bottom-up review of the ESRD Treatment Choice (ETC) demonstration including consideration of other options to pilot innovations to improve home dialysis take-up and kidney transplantation. Like other kidney advocates, we appreciated the long-overdue cabinet-level attention that was paid to these issues under the Trump administration. But, the ETC program is flawed in concept and execution, and represents a missed opportunity to address pressing problems. As explained in greater detail below, we think it would be [...]

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DPC Advocates Advance Dialysis Patient Issues at the State Level

2024-03-29T01:12:00+00:00February 19th, 2021|Categories: Advance Patient Choice, Medigap Coverage, Patient Ambassadors, Patient's Voice, State Advocacy, Transplant Donor Protection|

Despite the ongoing pandemic and economic crisis, many state legislators recognize the added challenges faced by dialysis patients every day. Some have responded by introducing legislation to increased dialysis patient access to Medigap plans to help patients cover their 20% coinsurance expenses. Others are working to advance legislation to help increase the pool of living kidney donors. DPC would like to recognize some of the patient leaders who are elevating the patient voice by educating state legislators on the importance of these efforts. DPC Board Members Adrian Miller and Pius Charles Murray are pressing for passage of critical legislation in their [...]

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State Legislatures Introduce Bills that Would Positively Impact Dialysis Patients

2024-03-29T01:12:00+00:00January 22nd, 2021|Categories: Access to Transplant, Article, Immunosuppressive Drug Coverage, Medigap Coverage, State Advocacy, Transplant Donor Protection|

With the start of the new year, state legislatures throughout the country are beginning their legislative sessions with a flurry of new bills being introduced on a wide-ranging number of topics. While the Covid-19 pandemic and its economic impact will dominate much of the activity at state houses across the country this year, we are encouraged that some of the bills already filed this session would improve health outcomes for dialysis patients. Both Arizona and Kentucky have already introduced bills to expand Medicare supplemental insurance, or Medigap. This is significant because Arizona and Kentucky are two of the 28 states that [...]

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Update on Immunosuppressive Medications Bill

2024-03-29T01:12:01+00:00December 30th, 2020|Categories: Article, Immunosuppressive Drug Coverage|

I wanted to thank you for your advocacy efforts in support of extending immunosuppressive drug coverage for transplant patients. Earlier this week, President Trump signed into law much needed legislation that will provide kidney transplant recipients with insurance for anti-rejection medications beyond the current 36 months of Medicare coverage currently available to them. This effort was a top priority for DPC when I joined the organization nearly a decade ago, and we continued to press for passage along with the broader kidney community. While our mission is to improve dialysis patient quality of life, our Board (which consists entirely of ESRD [...]

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Action Alert – Secure Patient Access to Immunosuppressive Medications

2024-03-29T01:12:01+00:00December 10th, 2020|Categories: Access to Transplant, Article, Immunosuppressive Drug Coverage, Take Action|

The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act recently passed in the House and has 24 cosponsors in the Senate. This bill was included in a larger legislative package, and we need your help getting this bill passed by contacting your Senators today. This bill was introduced by Representatives Ron Kind (D-WI) and Michael Burgess (R-TX), as well as Senators Bill Cassidy (R-LA) and Dick Durbin (D-IL). This legislation would extend Medicare coverage of immunosuppressive drugs beyond the current limit of 36 months for patients who are unable to obtain health insurance coverage elsewhere. Immunosuppressive medications play a [...]

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Dialysis Patient Citizens and Consumers’ Checkbook Introduce Dialysis Plan Choice To Help Patients During Open Enrollment

2024-03-29T01:12:01+00:00November 2nd, 2020|Categories: Advance Patient Choice, Care Coordination, Medicare Advantage, Press Release|

WASHINGTON, D.C., -- Dialysis Patient Citizens (DPC) today introduced Dialysis Plan Choice, a new online tool designed in collaboration with Consumers' Checkbook for dialysis patients to quickly and easily compare their current Medicare Fee-For-Service plan with the options available to them through Medicare Advantage now that Open Enrollment is underway. "For many dialysis patients, this year marks the first time they will be eligible to enroll in Medicare Advantage plans thanks to the passage of the 21st Century Cures Act in 2016," said DPC Board President Andrew Conkling. "Since this is new territory for many dialysis patients, we wanted to provide them with [...]

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Action Alert – Secure Kidney Patient Access to Immunosuppressive Medications

2024-03-29T01:12:02+00:00October 5th, 2020|Categories: Article, Immunosuppressive Drug Coverage, Take Action|

The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act (H.R. 5534, S. 3353) is gaining momentum in Congress. The bill was voted out of the Energy and Commerce Committee, and has over 100 cosponsors in the House and over 20 cosponsors in the Senate. We need you to help us press for passage by contacting your Members of Congress today. This bill was introduced by Representatives Ron Kind (D-WI) and Michael Burgess (R-TX), as well as Senators Bill Cassidy (R-LA) and Dick Durbin (D-IL). This legislation would extend Medicare coverage of immunosuppressive drugs beyond the current limit of 36 [...]

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CMS Announces Penalties and Rewards for Promoting Home Dialysis and Transplants

2024-03-29T01:12:02+00:00September 22nd, 2020|Categories: Access to Transplant, Article, Dialysis Funding, Transplant Donor Protection, Treatment Options|

On September 18, the Centers for Medicare & Medicaid Services (CMS) announced it finalized the End-Stage Renal Disease Treatment Choices (ETC) Model. The ETC Model was a cornerstone of President Trump’s Advancing Kidney Health Executive Order in 2019. It encourages an increased use of home dialysis and kidney transplants in approximately 30 percent of dialysis facilities and nephrology practices and will be implemented on January 1, 2021. CMS estimated reduced expenditures of $23 million over five and a half years, anticipating that providers assigned to the program will be penalized for not meeting standards. DPC and many other kidney groups opposed this [...]

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DPC Comments on CMS Proposed ESRD Annual Payment Rule to Increase Dialysis Patient Quality Care

2024-03-29T01:12:03+00:00September 1st, 2020|Categories: Access to Transplant, Care Coordination, Comment Letter, Innovation, Medicaid, Medicare Advantage, Quality Incentive Program, Treatment Options|

Each year—typically during the summer—the Centers for Medicare and Medicaid Services (CMS) puts out rules for how they are going to pay for dialysis treatment. The rules reflect CMS’ latest policies, and organizations have the opportunity to provide feedback about the rules before they go into effect on January 1. DPC provided feedback to CMS regarding their End-Stage Renal Disease (ESRD) Annual Payment rule. DPC’s letter addresses the following important topics for improving ESRD patient care: Protect Access for Costlier Patients by Completing Reconsideration of Case-Mix Adjusters Protect Access for Patients in Disadvantaged Regions by Addressing Social Risk Factors Focus [...]

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