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DPC’s 2020 Annual Membership Survey is Live!

2024-03-29T01:12:03+00:00August 6th, 2020|Categories: 5-Star Ratings, Access to Transplant, Article, Care Coordination, Charitable Premium Assistance, Dental Coverage, Dialysis Funding, Get Involved, Immunosuppressive Drug Coverage, Innovation, Medicaid, Medicare Advantage, Medigap Coverage, Quality Incentive Program, Take Action, Transplant Donor Protection, Transportation Services, Treatment Options|Tags: |

Elevate the Voice of Patients with Kidney Disease and Their Caregivers Our 2020 Annual Membership Survey is live, and it will remain open until Friday, August 21. We are counting on your participation, as patient feedback helps to shape our public policy agenda and patient education priorities for the next year. This year we ask that both patients and caregivers take our survey. Rest assured your responses will remain completely anonymous. We only share the overall survey results with state and federal level policy makers, so they will better understand your needs, experiences, and preferences. Your feedback is crucial. Therefore, we will [...]

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Care Coordination Fixes One of the Biggest Flaws in the American Health Care System

2024-03-29T01:12:04+00:00July 20th, 2020|Categories: Care Coordination, Patient's Voice, Spotlight|

Gloria Rohrer lost a leg after needing multiple surgeries when her kidney transplant failed. Rohrer later lost her eyesight in one eye while vacationing in Florida, which could have been avoided with proper care coordination. She could have shut down and become angry with the world, instead Rohrer became a stalwart advocate for patient access to care coordination services, so that others can avoid similar complications.

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Dialysis Patient Citizens Files Lawsuit Against HHS Secretary Alex Azar and CMS Administrator Seema Verma Over New Regulation That Undercuts Dialysis Patient Access to Affordable, High-Quality Care

2024-03-29T01:12:04+00:00June 22nd, 2020|Categories: Care Coordination, Legal Defense, Medicare Advantage, News, Press Release|

WASHINGTON, D.C., (June 22, 2020) -- Today, Dialysis Patient Citizens (DPC) filed suit in the United States District Court for the District of Columbia against Health and Human Services Secretary Alex Azar, Centers for Medicare and Medicaid Services Administrator Seema Verma, the U.S. Department of Health and Human Services, and the Centers for Medicare and Medicaid Services in opposition to a discriminatory new federal regulation that will limit the ability of hundreds of thousands of End-Stage Renal Disease (ESRD) patients to access affordable, high quality treatment. “ESRD patients successfully fought to get Congress to pass bipartisan legislation that would ensure [...]

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Visit the New Kidney Care Matters Site to Find Out What You Can do to Help Dialysis Patients

2024-03-29T01:12:05+00:00May 22nd, 2020|Categories: Article, Care Coordination, Policy Issues|

Dialysis Patient Citizens is excited to announce that the new Kidney Care Matters website is live. This initiative, led by DPC, is focused on promoting better kidney care through care coordination for people with End-Stage Renal Disease. Coordinated care means that all health care providers serving a patient share information with each other in a timely manner about the patient’s health, treatments prescribed, and care delivered. Well-structured care coordination has the potential to provide a more focused, dedicated care management approach that would streamline care, improve health outcomes and reduce healthcare costs. Kidney Care Matters is dedicated to providing patients [...]

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Patient Advocates Raising Awareness Through Letters to the Editor

2024-03-29T01:12:05+00:00May 20th, 2020|Categories: Advance Patient Choice, Article, Care Coordination, Press|

Dialysis Patient Citizens takes great pride in the work that our patient ambassadors are doing each and every day in their communities and local dialysis facilities. Through providing additional education and access to resources for fellow dialysis patients, they help to make a difference in the lives of patients and encourage them to be their own advocates. One of the ways our ambassadors are making their voices heard are through letters to the editor, where they write and submit a letter to the editor to his/her local newspaper about a kidney disease issue and/or the importance of advocating for better [...]

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DPC Supports Increased Access and Quality of Care for Dialysis Patients Amid COVID-19

2024-03-29T01:12:06+00:00March 23rd, 2020|Categories: Care Coordination, Comment Letter, Increase Quality of Care, Medicare Advantage, Transportation Services, Treatment Options|Tags: |

DPC provided feedback to the U.S. Department of Health and Human Services (HHS) regarding the COVID-19-related issues that the kidney community is facing. DPC made recommendations to HHS in the following areas: Transportation COVID-19 Treatments and Vaccinations Home Dialysis People with End-Stage Renal Disease have a higher risk for developing a severe illness from COVID-19. As a result, it is crucial we do all that we can to help this vulnerable population in order to decrease the negative impact and spread of the virus. Read DPC's letter to HHS below for more details: Kumiko Lippold, PhD, MPH Department of Health [...]

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DPC Comments on CMS Proposed Rule Regarding Medicare Advantage

2024-03-29T01:12:07+00:00March 10th, 2020|Categories: Care Coordination, Comment Letter, Medicare Advantage, Treatment Options|

In 2021 End-Stage Renal Disease (ESRD) patients will be permitted to enroll in Medicare Advantage (MA) plans, potentially bringing major changes to ESRD care and how patients experience it. When open enrollment begins this fall, we want to make sure patients have access to the same robust benefits offered with MA plans right now. DPC reached out to the Centers for Medicare & Medicaid Services (CMS) with recommendations on how to ensure ESRD patients maintain the access, choice and quality care they expect when these benefits are available to everyone. Currently, the only ESRD patients with MA plans are those [...]

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Happy Holidays and DPC’s Top 10 Accomplishments of 2019

2024-03-29T01:13:32+00:00December 20th, 2019|Categories: 5-Star Ratings, About DPC, Access to Transplant, Article, Care Coordination, Charitable Premium Assistance, Dental Coverage, Dialysis Funding, Immunosuppressive Drug Coverage, Innovation, Medicaid, Medicare Advantage, Medigap Coverage, Quality Incentive Program, Transplant Donor Protection, Transportation Services, Treatment Options|

Dialysis Patient Citizens wants to wish you and your family a Happy Holiday, as well as a safe and healthy New Year. Our offices will be closed for the holidays starting December 23 through January 1. We also want to take this opportunity to share our list of Top 10 Accomplishments for 2019, which would not have been possible without your support. Thank you again for helping us elevate the dialysis patient voice with policy makers. We are extremely grateful for all of your advocacy efforts, and we look forward to our continued collaboration in 2020 as we work together to improve dialysis [...]

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Congress Comments on CMS Proposed Rule Regarding ESRD Treatment Choices Model Demonstration

2024-03-29T01:13:33+00:00October 18th, 2019|Categories: Access to Transplant, Care Coordination, Comment Letter, News, Treatment Options|

This month Members of Congress reached out to the Centers for Medicare and Medicaid Services (CMS) about the ETC Model, which is the same rule DPC commented on last month that pertains to increasing the number of home dialysis treatments and kidney transplants. In the letter, lawmakers raised concerns that parallel many of the priorities DPC advocates for in order to improve dialysis patient care. Specifically, the letter addressed: Improving access to care and treatment options Promoting patient choice Advancing care coordination Increasing access to transplant With over 70 signatures from legislators supporting the letter, we are pleased to see that [...]

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2018 Midterm Election Wrap-Up

2024-03-29T01:13:35+00:00February 22nd, 2019|Categories: Article, Care Coordination, Charitable Premium Assistance, Medigap Coverage|

By Megan Hashbarger, Director of Congressional and State Relations, Dialysis Patient Citizens This past November, America held its 2018 midterm elections. We call it a midterm election because it is held between the four-year cycle of Presidential elections and is often seen as a reflection of the country’s temperament towards the President’s agenda. This cycle saw big wins for Democrats but also some solid victories for Republicans. While Democrats picked up over 40 seats and retook the majority in the House, Republicans held on to and increased their majority in the Senate. The only thing clear now is that for [...]

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