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DPC Urges Medicare Agency to Withdraw Proposal That Could Weaken Protections for Transplant Patients

2024-03-29T02:08:06+00:00March 6th, 2014|Categories: Access to Transplant, Article, Comment Letter, Immunosuppressive Drug Coverage, Improve Access to Care|

Dialysis Patient Citizens (DPC) weighed in against a Medicare proposal that would complicate some transplant patients’ access to immunosuppressive drugs. Medicare Part D, like other private health plans, uses drug formularies to keep down costs. Formularies favor certain drugs over others in exchange for discounts. Patients are encouraged to ask their doctors to first prescribe medications on the formulary to take advantage of lower co-pays. Often a patient’s condition can be addressed by a drug on the formulary, but many transplant patients find that “first-line” immunosuppressive treatments aren’t effective or have serious side-effects. For this reason, DPC told CMS: “Immunosuppressive [...]

Patient Outcry Draws a Two-Year Reprieve From Dialysis Cuts

2024-03-29T02:08:08+00:00December 1st, 2013|Categories: Article, Care Coordination, Dialysis Funding, Treatment Options|

The Centers for Medicare and Medicaid Services (CMS) acknowledged patient concerns by delaying for two years its planned cut to the Medicare End Stage Renal Disease (ESRD) program. The Medicare agency’s decision didn’t give dialysis patients everything we asked for, but it does mean that nearly $2 billion slated to be cut from kidney care in 2014 and 2015 will remain available to treat patients. However, it also means that patient advocates must be vigilant for any signs that access to care is shrinking as providers anticipate cuts now scheduled to take effect in 2016. The Medicare ruling came in the [...]

CMS Releases Final Rule on 9.4% Cut to Medicare ESRD Program

2024-03-29T02:08:08+00:00November 26th, 2013|Categories: Dialysis Funding, Improve Access to Care|

The Centers for Medicare and Medicaid Services (CMS) just released a final rule on the proposed 9.4% cut to dialysis funding. The final rule made the following changes: The payment rate for dialysis services will remain the same in 2014 and 2015. The proposed 12% cut to dialysis was delayed until 2016 and will be phased in over 4 years. There will be a 50% increase in the home dialysis training payment. In response, DPC released the following statement: DPC appreciates the Centers for Medicare and Medicaid Services’ (CMS) acknowledgment of patient concerns in delaying implementation of its proposed cut to [...]

Extension of Florida’s Managed Medical Assistance (MMA) Waiver

2024-03-29T02:08:08+00:00October 31st, 2013|Categories: Care Coordination, Comment Letter|

Justin Senior State Medicaid Director Agency for Health Care Administration 2727 Mahan Drive, MS #8 Tallahassee, Florida 32308 Re: Extension of Florida’s Managed Medical Assistance (MMA) Waiver (Project Number 11- W-00206/4) Dear Mr. Senior: Dialysis Patient Citizens (DPC) appreciates the opportunity to provide the Agency for Health Care Administration with comments on extension of the managed care waiver. As America’s largest patient-led organization representing dialysis patients, DPC’s membership consists of more than 26,000 end stage renal disease (ESRD) patients and their families. We seek to ensure the patient point of view is considered by policy makers on a wide range [...]

Promoting Care Coordination for Dialysis Patients

2024-03-29T02:08:08+00:00October 10th, 2013|Categories: Advance Patient Choice, Article, Care Coordination|

Federal policymakers have long grappled with the problem of better coordinating care for Medicare beneficiaries. As the Medicare Payment Advisory Commission has noted, "Gaps exist in care coordination in fee-for-service Medicare because of the fragmentation of service delivery, the lack of tools to help communicate across settings or providers, and the lack of a financial incentive to coordinate care." Part of the problem is that the Original, or fee-for-service, Medicare largely froze in place mainstream medical and insurance practices as they stood in 1965, when the program was created. Many health policy thought-leaders believe that the problem of uncoordinated care has been [...]

California Medicaid Coverage for Nutritional Supplements Restored

2024-03-29T02:08:57+00:00July 19th, 2013|Categories: Article, Improve Access to Care, State Advocacy|

The recently-signed 2013-2014 California budget included a full restoration of Medi-Cal coverage for nutritional supplements for dialysis patients. This change will take effect May 1, 2014. Dialysis patients require access to quality care including physician visits, prescription medication, dialysis treatments and a proper nutritional regimen in order to maintain their health and avoid hospitalization. DPC is pleased to see this coverage restored for California's 53,000 dialysis patients.

DPC Joins Kidney Community in Requesting Meeting with CMS on ESCOs

2024-03-29T02:08:58+00:00June 26th, 2013|Categories: Care Coordination, Comment Letter, Innovation|

Dear Ms. Tavenner and Dr. Gilfillan: On behalf of the undersigned organizations, thank you for your leadership of the Centers for Medicare and Medicaid Services (CMS) and the Center for Medicare and Medicaid Innovation (CMMI). Together, our organizations represent the patients, physicians, nurses, scientists, and other health professionals dedicated to advancing excellence in the care of patients with kidney disease. Foremost among our shared goals is continuous improvement in the quality, efficiency, and accessibility of care available to patients with kidney disease. Our organizations applaud the Centers for Medicare and Medicaid Services (CMS) and the CMS Innovation Center’s establishment of [...]

Congressional Corner: Two Transplant Bills Introduced in Congress

2024-03-29T02:08:59+00:00March 22nd, 2013|Categories: Access to Transplant, Immunosuppressive Drug Coverage, Improve Access to Care|Tags: |

By Carrie L., Director of Congressional and State Relations Recently, two bills relating to kidney and organ transplants have been introduced in Congress. Senator Richard Durbin of Illinois and Senator Thad Cochran of Mississippi introduced the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2013 (S. 323) in the Senate, and Congressman Michael Burgess and Congressman Ron Kind introduced a companion bill (H.R. 1325) in the House. If passed, these bills will extend Medicare immunosuppressive drug coverage for kidney transplant patients under 65 years old for the life of the graft. Under current law, Medicare beneficiaries who are [...]

Update: Dialysis Care Coordination Moves Forward!

2024-03-29T02:08:59+00:00March 19th, 2013|Categories: Blog, Care Coordination, Innovation|

By Jessica N., Director of Public Affairs As I highlighted last fall, DPC has been busy working with other kidney community organizations and the federal government on a new and improved way to provide care to dialysis patients. As part of recent health care reform efforts, Medicare has been developing new ways to coordinate care for various patient groups and they just came out with their dialysis specific program! Medicare, or more specifically the Centers for Medicare and Medicaid Innovation (CMMI), released the official blueprint for this new program, which they have called the Comprehensive ESRD Care Initiative. The initiative is [...]

DPC Comments on Medicaid Advantage Drive Times

2024-03-29T02:09:00+00:00January 24th, 2013|Categories: Comment Letter, Transportation Services|

January 24, 2013 Jonathan Blum Deputy Administrator and Director for the Center of Medicare Centers for Medicare and Medicaid Services Department of Health and Human Services Room 314G 200 Independence Avenue, SW Washington, DC 20201 Re: Medicaid Advantage Drive Times for ESRD Patients Dear Mr. Blum: On behalf of more than 24,000 Dialysis Patient Citizens (DPC) members and over 400,000 end-stage renal disease (ESRD) patients currently on dialysis, thank you for your leadership at the Centers for Medicare and Medicaid Services (CMS).  As the nation’s largest patient-led organization representing dialysis patients, DPC’s membership consists of dialysis and pre-dialysis patients and their [...]

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