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Medicare Policy Proposal Jeopardizes Care for Those on Dialysis

2024-03-29T01:09:16+00:00September 8th, 2023|Categories: Access to Transplant, Article, Dialysis Funding, Improve Access to Care, Innovation, Medicare Advantage, Policy Issues, Staffing Shortages, Treatment Options|

CEOs of 3 kidney care organizations explain flaws in CMS' recent reimbursement proposal. In recent years, lawmakers have turned their attention to advancing health equity and creating opportunities for the improvement of historically underserved communities—and rightly so. The urgent need for such improvements is dramatically apparent for people who have end-stage renal disease (ESRD), or kidney failure. While people of all races and ethnicities develop chronic kidney disease (CKD) at similar rates, ESRD disproportionately impacts people of color. Black Americans make up 13% of the US population, but the disparities are evident when one considers that they account for 35% of Americans with [...]

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DPC Raises Alarm on Health Workforce Shortages

2024-03-29T01:09:16+00:00August 23rd, 2023|Categories: Article, Comment Letter, Improve Access to Care, Medicare Advantage, Quality Incentive Program|

DPC’s letter commenting on this year’s ESRD Payment Rule warns that Medicare is not addressing workforce shortages that are impacting patient care. The letter reports the following findings from our recent member survey: 62% of patients reported that the recent labor shortages had impacted their care: 43% said that staff turnover disrupted their care; 28% reported delays to their treatment; and 7% reported that they had to change shifts or facilities. In 2013, in response to a question about wait times at facilities, the same proportion of patients, 14%, reported increases in wait times as decreases in wait times. This year, [...]

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DPC’s Letter to Hon. Chiquita Brooks-LaSure, Administrator for CMS, on End Stage Renal Disease (ESRD) Prospective Payment System (PPS) Calendar Year (CY) 2024 Proposed Rule (CMS-1782-P)

2024-03-29T01:09:16+00:00August 18th, 2023|Categories: Comment Letter, Improve Access to Care, Medicare Advantage, Protect Patient Care, Staffing Shortages|

August 18, 2023 Hon. Chiquita Brooks-LaSure, Administrator Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, MD  21244 Re:       End Stage Renal Disease (ESRD) Prospective Payment System (PPS) Calendar Year (CY) 2024 Proposed Rule (CMS-1782-P) Dear Administrator Brooks-LaSure: Dialysis Patient Citizens (DPC) writes to offer its comments on the above referenced proposed rule. DPC's membership, currently about 35,000, is restricted to kidney disease patients and their family members. DPC is a patient-led organization.  Our by-laws require that the President, Vice President and at least 51% of the Board be current dialysis patients.  The non-dialysis patients serving on our Board [...]

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National Kidney Month Reminds Us of the Possibilities of Life on Dialysis

2024-03-29T01:09:19+00:00February 21st, 2023|Categories: Article, Care Coordination, Medigap Coverage, News, Patient Ambassadors, Patient's Voice, Policy Issues, Spotlight, Treatment Options|

The coming March marks the start of National Kidney Month, a time to promote kidney health, raise awareness of the obstacles facing patients, and advocate for policies that help them as they navigate life with kidney disease. However, National Kidney Month also means so much more. It is an opportunity to spread awareness of the fact that being on dialysis doesn’t mean having to put your life on hold. You can still pursue a career and do the things you love most, whether that’s traveling, camping, or spending time with family and friends. At Dialysis Patient Citizens, we are extremely [...]

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DPC Responds to Medicare’s Move Toward Medically Necessary Dental Care

2024-03-29T01:09:21+00:00August 26th, 2022|Categories: Access to Transplant, Article, Comment Letter, Dental Coverage, Improve Access to Care, Medicare Advantage|

DPC submitted a comment letter applauding the Center for Medicare and Medicaid Services (CMS) for its announcement that it will cover dental work for kidney transplant candidates when oral health issues are a barrier to transplant surgery. “This proposal is an important recognition and clarification of CMS’s existing authority, which will help to ensure that Medicare beneficiaries can access and afford more of the dental care they need to advance their health,” DPC said. CMS also asked whether there are “types of surgery, or clinical scenarios involving acute or chronic conditions that would have an improved patient outcome if certain dental [...]

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DPC’s Letter to Hon. Chiquita Brooks-LaSure, Administrator for CMS, on Move Toward Medically Necessary Dental Care

2024-03-29T01:09:22+00:00August 25th, 2022|Categories: Comment Letter, Dental Coverage, Medicare Advantage, Protect Patient Care|

August 25, 2022 Hon. Chiquita Brooks-LaSure, Administrator Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, MD  21244 Re: CMS-1770-P (Section II.L.) Dear Administrator Brooks-LaSure: Dialysis Patient Citizens (DPC) writes to offer its comments on the above referenced proposed rule. DPC's membership, currently over 30,000, is restricted to kidney disease patients and their family members. DPC is a patient-led organization.  Our by-laws require that the President, Vice President and at least 51% of the Board be current dialysis patients.  The non-dialysis patients serving on our Board are former dialysis patients with kidney transplants. Our volunteer board members have represented [...]

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Medicare Dental Coverage for Transplant Candidates May be on the Way

2024-03-29T01:10:06+00:00July 5th, 2022|Categories: Article, Dental Coverage, Medicare Advantage|

The Centers for Medicare & Medicaid Services (CMS) is proposing expanded coverage of “medically necessary” dental treatment, including treatments necessary to qualify for an organ transplant. DPC and other consumer advocates have been pressing for this change for several years. Medicare currently pays for dental services in a limited number of circumstances, such as when that service is an integral part of specific treatment of a beneficiary’s primary medical condition. Some examples include reconstruction of the jaw following accidental injury, tooth extractions done in preparations for radiation treatment for cancer involving the jaw, or oral exams preceding kidney transplantation. CMS is [...]

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Rhode Island Passes Medigap Access Legislation

2024-03-29T01:10:07+00:00June 24th, 2022|Categories: Article, Improve Access to Care, Medigap Coverage|

On Thursday, June 23, 2022, the Rhode Island General Assembly held the final vote leading to passage of two bills granting access to Medigap coverage for dialysis patients under age 65. Sponsored by Rep. Brian Patrick Kennedy (D-District 38), Speaker Pro Tempore, and Senator Dennis L. Algiere (R-District 38), Senate Minority Leader, H 7244 and S 2194 require that Medicare supplement policies be made available to any applicant under age 65 eligible for Medicare due to a disability or End Stage Renal Disease (ESRD). The legislative language in these bills (which is identical) specifies that Medicare Supplement Plan A be made [...]

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What Patients Should Know About Value-Based Care

2024-03-29T01:10:08+00:00May 23rd, 2022|Categories: Article, Care Coordination, Improve Access to Care, Increase Quality of Care, Medicare Advantage|

DPC is a strong advocate of Value-Based Care. Value-Based Care means that your primary providers accept a single payment or budgeted amount to cover all your medical needs. For instance, if you are in a program like Comprehensive Kidney Care Contracting (or CKCC, formerly known as the ESCO program) your dialysis provider and nephrologist take responsibility for all your care—not just kidney care but other conditions, such as diabetes, and other sites of care, such as hospitals. There are currently three types of value-based care programs that kidney patients may be in: Comprehensive Kidney Care Contracting (CKCC) – you are [...]

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DPC Hosts Successful 2022 Congressional Advocacy Day

2024-03-29T01:10:08+00:00May 13th, 2022|Categories: Advance Patient Choice, Get Involved, Improve Access to Care, Medigap Coverage, Patient's Voice, Promote Financial Security|

On Thursday, May 12th, DPC hosted its’ annual Advocacy Day when we connect patients, family members, and Partners in Care with their Members of Congress so they can tell their story with dialysis and advocate for legislative priorities that would help them. Once again, out of an abundance of caution, our advocacy day was virtual, but we were still able to have wonderful participation. This year we had 113 participants who participated in 113 meetings and represented 29 states. They talked with their Congressional offices about The Jack Reynolds Memorial Medigap Expansion Act which would give all ESRD patients access to [...]

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