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Medicare Policy Proposal Jeopardizes Care for Those on Dialysis

2024-03-29T01:09:16+00:00September 8th, 2023|Categories: Access to Transplant, Article, Dialysis Funding, Improve Access to Care, Innovation, Medicare Advantage, Policy Issues, Staffing Shortages, Treatment Options|

CEOs of 3 kidney care organizations explain flaws in CMS' recent reimbursement proposal. In recent years, lawmakers have turned their attention to advancing health equity and creating opportunities for the improvement of historically underserved communities—and rightly so. The urgent need for such improvements is dramatically apparent for people who have end-stage renal disease (ESRD), or kidney failure. While people of all races and ethnicities develop chronic kidney disease (CKD) at similar rates, ESRD disproportionately impacts people of color. Black Americans make up 13% of the US population, but the disparities are evident when one considers that they account for 35% of Americans with [...]

DPC Raises Alarm on Health Workforce Shortages

2024-03-29T01:09:16+00:00August 23rd, 2023|Categories: Article, Comment Letter, Improve Access to Care, Medicare Advantage, Quality Incentive Program|

DPC’s letter commenting on this year’s ESRD Payment Rule warns that Medicare is not addressing workforce shortages that are impacting patient care. The letter reports the following findings from our recent member survey: 62% of patients reported that the recent labor shortages had impacted their care: 43% said that staff turnover disrupted their care; 28% reported delays to their treatment; and 7% reported that they had to change shifts or facilities. In 2013, in response to a question about wait times at facilities, the same proportion of patients, 14%, reported increases in wait times as decreases in wait times. This year, [...]

DPC’s Letter to Hon. Chiquita Brooks-LaSure, Administrator for CMS, on End Stage Renal Disease (ESRD) Prospective Payment System (PPS) Calendar Year (CY) 2024 Proposed Rule (CMS-1782-P)

2024-03-29T01:09:16+00:00August 18th, 2023|Categories: Comment Letter, Improve Access to Care, Medicare Advantage, Protect Patient Care, Staffing Shortages|

August 18, 2023 Hon. Chiquita Brooks-LaSure, Administrator Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, MD  21244 Re:       End Stage Renal Disease (ESRD) Prospective Payment System (PPS) Calendar Year (CY) 2024 Proposed Rule (CMS-1782-P) Dear Administrator Brooks-LaSure: Dialysis Patient Citizens (DPC) writes to offer its comments on the above referenced proposed rule. DPC's membership, currently about 35,000, is restricted to kidney disease patients and their family members. DPC is a patient-led organization.  Our by-laws require that the President, Vice President and at least 51% of the Board be current dialysis patients.  The non-dialysis patients serving on our Board [...]

DPC Elevates Patient Advocacy Work to State Lawmakers

2024-03-29T01:09:16+00:00August 17th, 2023|Categories: Article, Medigap Coverage, Policy Issues, State Advocacy|

Over August 14 – 16, 2023, Dialysis Patient Citizens (DPC) spent time advocating for dialysis patients at the National Conference of State Legislatures (NCSL) Annual Legislative Summit, held in Indianapolis, Indiana. Yolanda Brisbane, Grassroots Manager and State Advocacy Directors, Elizabeth Lively and Pamela Zielske spoke with lawmakers from across the nation about issues that impact dialysis patients. With more than 6,000 legislators and staff in attendance, the NCSL conference was a tremendous opportunity to elevate our advocacy work with state policymakers. Conversations also extended to delegations from around the globe, as attendees from South Africa, Nigeria, Ghana, Portugal, India, Brazil, Germany, [...]

OP-ED Calls for equal Medigap coverage for all Medicare Enrollees

2024-03-29T01:09:16+00:00August 8th, 2023|Categories: Article, Medigap Coverage|

In a compelling opinion piece authored by Rich Sutphin, Executive Director of the West Virginia Rural Health Association, the call was made to West Virginia policymakers to ensure that their constituents were treated equally regarding access to affordable Medicare Supplement (Medigap) insurance coverage. The opinion piece was picked up by newspapers across the state, including The Herald Dispatch, The Weston Democrat, Mineral News and Tribune, The Jackson Star and Herald, The Wayne County News, The Preston County News and Journal and the West Virginia Press Association. You can read the op-ed here: https://wvpress.org/wvpa-sharing/opinion-west-virginia-kidney-patients-deserve-access-to-care-at-any-age/ DPC invites you to share your story in [...]

Affordable Medigap Access Now Available in Rhode Island, Kentucky and Virginia Coming Soon!

2024-03-29T01:09:16+00:00July 25th, 2023|Categories: Article, Medigap Coverage, News, Patient Ambassadors, State Advocacy|

During 2022 and 2023, DPC worked tirelessly to secure passage of legislation providing access to affordable Medigap coverage for under age 65 kidney failure patients living in three states. Those states – Kentucky, Rhode Island and Virginia, are creating regulations to implement the new state laws. The law in Rhode Island became effective July 1, 2023. In Kentucky and Virginia, the laws passed this year become effective January 1, 2024. If you live in one of these states and are not yet age 65, check with your dialysis facility finance or social workers to learn more about the Medigap Plans being [...]

Local View: Bridging the Medigap

2024-03-29T01:09:17+00:00July 18th, 2023|Categories: Medigap Coverage, Patient Stories in the News, Private Insurance Coverage|

Published in the Lincoln Journal Star We hear endless stories in the news about challenges in our health care system, but oftentimes the effects feel abstract. As someone who has dedicated their career to improving the medical care and outcomes of patients with kidney disease through transplantation, I’ve seen firsthand how devastating kidney failure can be, particularly for Nebraskans who don’t have adequate health coverage. While the situation is grave, our neighboring states have shown how state governments can provide life-saving relief. We would be wise to follow their lead. More than 3,000 Cornhuskers are living with kidney failure, and [...]

Medicare Payment Rule for 2024 Shortchanges Dialysis Clinics on Rising Wages

2024-03-29T01:09:17+00:00July 6th, 2023|Categories: Article, Dialysis Funding, Promote Financial Security|

As kidney and other healthcare providers face workforce shortages, inflation, and higher wage demands, the federal agency which oversees Medicare is proposing a mere 1.7% increase in dialysis reimbursements for 2024. According to the government’s own Bureau of Labor Statistics (BLS), wages and salaries increased 5.0% during the last year and increased 4.7% the year before; after insufficient updates over the past two years, Medicare payments are falling far behind the actual costs for clinic staff, potentially threatening patient access to care. Unlike updates to Social Security checks, which are determined by BLS inflation data, Medicare uses “forecasts” of future inflation. [...]

Dialysis Patient Citizens Statement on New CMS Rule That Would Harm Patient Access to Care

2024-03-29T01:09:17+00:00June 29th, 2023|Categories: Dialysis Funding, News, Press Release|

WASHINGTON, D.C. (June 29, 2023) -- Dialysis Patient Citizens (DPC), the nation's largest dialysis patient advocacy organization, released the following statement regarding a new rule proposed by the Centers for Medicare and Medicaid Services (CMS) that would only increase reimbursement for dialysis treatments by 1.6% in calendar year 2024, while also falling short in funding access to new therapies. "This proposed rule sends a clear and unfortunate message that CMS does not prioritize access to care for kidney disease patients like me," said Andrew Conkling, DPC's Board Chair and a lifelong kidney patient. "Dialysis patients are already some of the most vulnerable Americans, and [...]

Nebraska resident rallies for LB-32

2024-03-29T01:09:17+00:00June 21st, 2023|Categories: Patient Stories in the News, Private Insurance Coverage|

NEBRASKA -- Fifteen states do not require insurers to offer Medigap policies to people under 65 who are already enrolled through Medicare according to AARP. Medigap helps patients to afford deductibles and other out-of-pocket costs with policies such as Medicare Part B. However, Nebraska is one of those states that doesn't require it to be offered, to the shock of one North Platte resident named Jean Kay battling multiple sclerosis. "It was mind-boggling," said Kay. Jean Kay has been living with MS for over 20 years. Back in 2018, she was denied supplemental insurance due to her age of 61, [...]

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