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DPC Hosts Successful 2022 Congressional Advocacy Day

2024-03-29T01:10:08+00:00May 13th, 2022|Categories: Advance Patient Choice, Get Involved, Improve Access to Care, Medigap Coverage, Patient's Voice, Promote Financial Security|

On Thursday, May 12th, DPC hosted its’ annual Advocacy Day when we connect patients, family members, and Partners in Care with their Members of Congress so they can tell their story with dialysis and advocate for legislative priorities that would help them. Once again, out of an abundance of caution, our advocacy day was virtual, but we were still able to have wonderful participation. This year we had 113 participants who participated in 113 meetings and represented 29 states. They talked with their Congressional offices about The Jack Reynolds Memorial Medigap Expansion Act which would give all ESRD patients access to [...]

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Dialysis, Kidney Transplant Patients Need Lawmakers To Help

2024-03-29T01:10:08+00:00May 5th, 2022|Categories: Medigap Coverage, Patient Stories in the News|

Fo­cal seg­men­tal glomeru­loscle­ro­sis (FSGS) caused my kid­neys to fail nearly 30 years ago. Since then, I’ve been on and off dial­y­sis as FSGS and the treat­ments it re­quires have taken their toll on my health and sev­eral trans­plant kid­neys. The treat­ment process and the costs as­so­ci­ated with it have been egre­gious. The high cost of med­ica­tions to keep trans­plant kid­neys healthy makes them fi­nan­cially un­ten­able for many pa­tients, and dial­y­sis comes with a heavy cost, too. That’s with­out fac­tor­ing in the med­ical ex­penses due to the skin can­cer and bone dis­ease caused by the FSGS treat­ments I’ve re­ceived. As­sis­tance from Medicare and Med­ic­aid saved [...]

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Dialysis patients under 65 face major cost hurdle

2024-03-29T01:10:08+00:00May 3rd, 2022|Categories: Patient Ambassadors, Patient Stories in the News, Spotlight|

Starting dialysis felt like being swooped into a cage with no warning. At the height of quarantine during the COVID-19 pandemic, I found out the chemotherapy treatments for my breast cancer had contributed to my kidneys failing and I needed to start on dialysis immediately. The next two weeks were a lonely and frightening experience, and I wouldn’t have survived without my medical team’s quick work and my family’s support. After those initial two weeks in the hospital, I spent three months going through four-hour dialysis treatments three times each week. Something that didn’t pose as big an issue for [...]

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Elevating Dialysis Patient Voices Bolsters State Advocacy Victories

2024-03-29T01:10:08+00:00April 27th, 2022|Categories: Access to Transplant, Article, Medicaid, Medicare Advantage, Medigap Coverage|

As many 2022 state legislative sessions are winding down or have recently wrapped-up, it is a good time to update DPC members on state legislation important to dialysis patients. The participation of our Patient Ambassadors in DPC’s advocacy efforts has been really beneficial in educating legislators to help them make more-informed decisions on legislation that impacts End Stage Renal Disease (ESRD) patients. Improving access to affordable Medicare Supplemental Insurance (a.k.a., Medigap) plans is a top priority for DPC, and legislation was introduced in multiple states: Arizona, Kentucky, Louisiana, Nebraska, Maryland, New Jersey, Rhode Island, Vermont, and Wisconsin. Arizona, Kentucky, Nebraska, and [...]

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DPC’s Letter to Daniel Tsai, Deputy Administrator and Director of CMCS

2024-03-29T01:10:08+00:00April 21st, 2022|Categories: Medicaid, Medicare Advantage, Medigap Coverage|

Daniel Tsai, Deputy Administrator, and Director Center for Medicaid and CHIP Services Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, MD  21244 Re:       Eligibility Redeterminations for Enrollees with Chronic Health Conditions Dear Mr. Tsai: When the Public Health Emergency ends and states resume making Medicaid eligibility redeterminations, up to 15 million enrollees are expected to lose their coverage. We are concerned that as many as one-quarter of those individuals may be receiving treatment for  chronic diseases, and that treatment might be interrupted by a lapse in insurance coverage. We are asking that CMS and the states make a special [...]

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DPC Urges Continuity of Care for Medicaid Enrollees with Chronic Health Conditions When Eligibility Redeterminations Resume

2024-03-29T01:10:08+00:00April 21st, 2022|Categories: Article, Medicaid, Protect Patient Care|

Two years ago, Congress mandated a pause on Medicaid eligibility redeterminations during the COVID Public Health Emergency. The emergency declaration is expected to end soon, and states will again require Medicaid enrollees prove their eligibility. As many as 15 million enrollees are expected to lose their coverage, mostly because they have accepted higher-paying jobs, but others may slip through the cracks due to address changes and the like. DPC has written to the federal Medicaid director asking that CMS and the states make a special effort to ensure continuity of coverage for patients with chronic diseases, such as CKD, hypertension, and [...]

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Guest: National Kidney Month provides reminder of cost hurdles for dialysis patients

2024-03-29T01:10:08+00:00March 30th, 2022|Categories: Medigap Coverage, Patient Stories in the News|

The month of March marks National Kidney Month in the U.S., an opportunity to bring awareness to something that affects more than one in seven adults, and a chance to reflect on the struggles kidney patients across the U.S. face every day. Currently, kidney patients face an uneven playing field, and a lot still needs to be accomplished in order to ensure that all patients have access to the care they need. It’s an unlevel field that I’ve been operating on for most of my life. I was born with only one functioning kidney, meaning I knew early on that I [...]

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Support S 2194

2024-03-29T01:10:08+00:00March 28th, 2022|Categories: Patient Ambassadors, Patient Stories in the News, Spotlight|

March 28, 2022 The Honorable Joshua Miller, Chair The Honorable Bridgett G. Valverde, Vice Chair The Honorable Valarie J. Lawson, Secretary Members, Senate Health and Human Services Committee Rhode Island General Assembly RE: Support S 2194 Dear Chair Miller, Vice Chair Valverde, Secretary Lawson, Members of the Committee: As a kidney dialysis patient residing in Woonsocket, a volunteer Patient Ambassador of Dialysis Patient Citizens and on behalf of the more than 1,800(i) fellow Rhode Island residents with End State Renal Disease (ESRD), I write to ask your support of S 2194, which will provide access to fair and equitable Medicare [...]

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DPC’s Letter to Dr. Meena Seshamani, Deputy Administrator and Director for CMS

2024-03-29T01:10:09+00:00March 7th, 2022|Categories: Comment Letter, Increase Quality of Care, Policy Issues, Protect Patient Care|

March 7, 2022 Dr. Meena Seshamani Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, MD  21244 Re:      Dialysis Workforce Issues Dear Dr. Seshamani: We are writing to express our concerns about shortages of labor and supplies that are causing disruptions in dialysis treatments. We urge CMS and its sister operating divisions in HHS to develop plans for health care workforce generally and dialysis workforce in particular; and to make whatever adjustments are necessary to Medicare payment policy necessary to assure patients’ access to care. To the best of our recollection, the U.S. is experiencing a tight labor market [...]

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DPC Urges Medicare Officials to Take Action on Dialysis Workforce Shortages

2024-03-29T01:10:09+00:00March 7th, 2022|Categories: Article, Comment Letter, Improve Access to Care, Increase Quality of Care, Medicare Advantage|

DPC has written to top Medicare officials asking that they develop policy options to address the current labor shortage. The letter notes that the lengthy rulemaking process used to update payments to healthcare providers is ill-suited to react to urgent changes in the labor market. Fourteen years ago, the prestigious Institute of Medicine warned that as Americans aged, there would be fewer workers to take care of more elderly and disabled individuals. DPC’s letter urges officials to take another look at the report, which recommended “wage pass through” components of provider payments to address rising wages and delegating more responsibilities to [...]

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