I know we can count on Congressman Carlos Giménez to support this important legislation. I’ve dealt with health issues my entire life. I was born with Polycystic Kidney Disease (PKD), which has caused me to have multiple organ transplant surgeries and receive life-saving dialysis treatments. And, in addition to a successful liver transplant, I’ve had two kidney transplants that my body rejected, and I am now on a waitlist to receive a third kidney. In between these surgeries, I receive dialysis treatment, allowing my body to function properly and live my life. On top of the dreaded feeling of high patient volume at my [...]

In 2017, I had a below-knee leg amputation, during which it was discovered my kidneys had deteriorated. These health crises forced me to undergo physical rehabilitation and begin dialysis treatments for my kidneys. While receiving dialysis, I started writing my book on navigating midlife, which was a form of mental therapy. My book discusses my triumphs and trials as an amputee on dialysis. One of the struggles that I faced, and other kidney patients do as well, is covering the 20% of dialysis that Medicare doesn’t cover. Kidney patients under 65 don’t always have access to private insurance or Medigap [...]

Life with kidney disease while I was working in the United Arab Emirates was very different compared to what it is in the U.S. I had to receive all of my treatments in the hospital, and because the coverage options available weren’t the same as they are here, I had to pay for my treatments out of pocket. I felt I could get better options moving back to the U.S., but it was still remarkably expensive. Because Medicare only covers 80% of the cost of treatment, I needed to buy additional coverage to help pay for the rest until I [...]

How much money do you make in an average year? Think about it for a minute. Now, imagine that entire annual salary, and then some, is gone in a month. Why, you may ask? Because those are the costs dialysis patients incur on a monthly basis. While all dialysis patients are covered by traditional Medicare, this only covers 80 percent, leaving patients to try to find a way to pay for the rest. One point four million dollars. That is the amount billed to my secondary insurance, which I am fortunate to get through my wife's work, since July 1, [...]

I was devastated when I wound up in the emergency room and found out my kidneys had failed. I was immediately placed on dialysis and began a new way of life. My new reality meant spending many hours per week at my dialysis center receiving life-saving treatments. Dialysis treatments can be costly. Medicare will only cover up to 80% of the costs, and my options are limited for covering the rest since I’m under 65. I am lucky to have had assistance from the American Kidney Fund to help pay the remainder. However, many patients are not as fortunate and [...]