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DPC Advocacy Day 2017 Recap

2024-03-29T01:13:40+00:00July 13th, 2017|Categories: Article, Care Coordination, Charitable Premium Assistance, Medigap Coverage|Tags: |

Each year, Dialysis Patient Citizens is proud to bring dialysis patients to Washington, D.C. in order to meet with their legislators about the issues affecting patients nationwide. This year, we are pleased to have hosted 25 dialysis patients and their family members from across the country. Patients arrived to Washington, D.C. and were greeted by an informal networking dinner to meet new advocates and re-connect with veteran advocates. The following day, those needing dialysis received treatment in four different local facilities then returned for an afternoon of advocacy training. Our primary “asks” this year were centered around the Medigap provision [...]

Dialysis Patient Advocates Urge Congress to Improve Kidney Disease Research and Care

2024-03-29T01:13:40+00:00May 30th, 2017|Categories: Dialysis Funding, Medigap Coverage, Press Release|

Advocates for dialysis patients announced their strong support of bipartisan legislation introduced in Congress last week that would augment research on kidney disease, improve coordination among kidney care providers and expand coverage options for patients with kidney failure, also called end-stage renal disease (ESRD). The Chronic Kidney Disease Improvement in Research and Treatment Act (H.R. 2644) would improve the care of the more than 675,000 ESRD patients nationwide who require transplantation or frequent dialysis treatments to survive. Dialysis Patient Citizens (DPC), a leading advocacy group for people with kidney disease that represents nearly 30,000 dialysis and pre-dialysis patients, is particularly [...]

Advocating for Patients on World Kidney Day

2024-03-29T01:13:40+00:00March 9th, 2017|Categories: About DPC, Article, Charitable Premium Assistance, Medicare Advantage, Medigap Coverage, What is Kidney Disease?|Tags: |

Today the global community of people fighting kidney disease commemorates World Kidney Day, an effort to raise awareness of the importance of healthy kidneys and reduce the devastating impact of kidney disease, which affects 1 out of every 10 people worldwide. Although the condition is incurable, effective treatments are available. An estimated 2.6 million people with end-stage renal disease (ESRD), or kidney failure, received dialysis in 2010. That number is expected to more than double to 5.4 million by 2030. As the incidence of kidney disease rises, so too does the importance of ensuring that patients have access to lifesaving care. [...]

Dialysis Patient Citizens Wins Court Ruling Against Insurer Veto on ESRD Patients

2024-03-29T01:13:40+00:00February 16th, 2017|Categories: Access to Transplant, Charitable Premium Assistance, Improve Access to Care, Legal Defense, Medigap Coverage, Treatment Options|

In a lawsuit filed by DPC against the Department of Health and Human Services, a federal court has blocked a regulation that would have given insurers veto power over ESRD patients’ access to private coverage. The judge called the regulation, that could have forced dialysis patients off their current health insurance and jeopardized their access to care, “arbitrary and capricious.” In enjoining the regulation’s enforcement, the U.S. District Court for the Eastern District of Texas held that the rule was 1) procedurally defective because HHS adopted it without first giving the public notice of it and seeking comment on it, [...]

Dialysis Patient Advocates Applaud Ruling in Case Against CMS

2024-03-29T01:13:40+00:00January 25th, 2017|Categories: Access to Transplant, Charitable Premium Assistance, Legal Defense, Medigap Coverage, Press Release|

Federal court blocks CMS regulation that would give insurers veto power over access to private coverage; judge calls it ‘arbitrary and capricious’ Washington, D.C. – Advocates for dialysis patients are celebrating a federal court ruling today to grant a preliminary injunction preventing the U.S. Department of Health and Human Services (HHS) from implementing a regulation that could force patients off their current health insurance and jeopardize their access to care. In enjoining the regulation’s enforcement, the U.S. District Court for the Eastern District of Texas held that the rule was 1) procedurally defective because HHS adopted it without first giving [...]

Dialysis Patient Advocates Seek Restraining Order Against CMS

2024-03-29T01:13:41+00:00January 9th, 2017|Categories: Access to Transplant, Care Coordination, Charitable Premium Assistance, Medigap Coverage, Press Release, State Advocacy|

Lawsuit charges that CMS rule to take effect Jan. 13 gives insurers illegal veto power over access to private coverage Washington, D.C. – Advocates for dialysis patients filed suit in federal court today to prevent the U.S. Department of Health and Human Services (HHS) from enforcing a rule that could force patients off their current health plans and jeopardize their access to care. The regulation, which the Centers for Medicare and Medicaid Services (CMS) issued Dec. 13 outside the formal rulemaking process, gives insurers the power to prevent dialysis patients from receiving charitable premium assistance that makes it possible for [...]

Protecting Dialysis Patients’ Health Coverage

2024-03-29T01:13:41+00:00January 9th, 2017|Categories: Access to Transplant, Blog, Care Coordination, Charitable Premium Assistance, Legal Defense, Medigap Coverage|Tags: |

By Hrant Jamgochian, CEO Dialysis Patient Citizens Across the country, thousands of patients with end-stage renal disease (ESRD) face the agonizing choice of paying for necessities such as rent and food, or paying the insurance premiums that enable them to get dialysis and other critical care. Fortunately, ESRD patients have options. Thanks to federal law, they can enroll in Medicare at any age. Or, if they would rather keep a private insurance plan, they can apply for financial help from charities such as the American Kidney Fund. These payments are a lifeline that enables patients to maintain their existing coverage and [...]

Dialysis Patients Outraged by CMS Move Giving Insurers Illegal Veto Power Over Access to Private Coverage

2024-03-29T01:13:41+00:00December 19th, 2016|Categories: Access to Transplant, Care Coordination, Charitable Premium Assistance, Legal Defense, Medigap Coverage, Press Release|

Dialysis Patient Citizens says CMS rule tacitly allows insurers to discriminate based on patients’ health condition Washington, D.C. – Advocates for dialysis patients are outraged by an interim final rule issued late yesterday by the Centers for Medicare and Medicaid Services (CMS) that could force patients off their current health plans and jeopardize their access to care. The rule, which CMS wrote with the stated purpose of ensuring that dialysis patients receive accurate information about their health coverage options, instead empowers insurers to prevent those patients from receiving charitable premium assistance that makes their health insurance affordable. “The administration is [...]

DPC Urges Members to Share Stories of Insurance Assistance from the American Kidney Fund

2024-03-29T01:50:30+00:00March 10th, 2016|Categories: Article, Charitable Premium Assistance, Medigap Coverage|

For decades, dialysis patients have received financial assistance from the American Kidney Fund to help them maintain their private insurance or Medigap coverage. Recently, insurers started to reject those payments from AKF in an effort to purge kidney patients from their health plans. We ask you to please share your stories about the help that AKF has provided and about any problems you have experienced due to an insurance company refusing to take AKF payments. You need not give your name. Click here to take our survey.

DPC Urges CMS to Prioritize Patient Access

2024-03-29T01:50:30+00:00January 19th, 2016|Categories: Access to Transplant, Care Coordination, Charitable Premium Assistance, Medicare Advantage, Medigap Coverage, Transportation Services|Tags: |

Last month, DPC sent a letter commenting on the “Notice of Benefit and Payment Parameters for 2017” proposed rule. This annual rule by the Centers for Medicare and Medicaid Services (CMS) contains proposed changes to the exchange plan coverage of the Affordable Care Act. DPC’s letter focuses on the importance of insurance coverage and network quality for end-stage renal disease (ESRD) patients. One issue the letter comments on pertains to network adequacy. Network adequacy describes an insurance plan’s ability to provide a sufficient amount of in-network providers to subscribers in the plan. Suggestions to improve network adequacy include requiring all [...]

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