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LETTER: Medigap Expansion is Needed

2024-03-29T01:10:14+00:00August 11th, 2021|Categories: Patient Stories in the News|

To the editor: As someone who has been on dialysis for 23 years, educating other patients and advocating for them gives my job meaning. I get to assist people who have gone through the same challenges I have and help people better understand exactly what life on dialysis is like. Through my work, I’ve seen how many patients struggle with high costs. A lot of patients rely on Medicare, but can have considerable out-of-pocket costs when it doesn’t cover what they need. This is especially true for patients under 65, who often don’t receive Medigap coverage for those costs that [...]

Medigap Expansion Bill Vital to Making Treatments Affordable

2024-03-29T01:10:14+00:00July 29th, 2021|Categories: Patient Stories in the News, Spotlight|

Something felt a little off after my daughter was born. I started feeling more exhausted each day after work, and at one point one of my elementary school students even pointed out that I didn’t look well. I had always been perfectly healthy, so I never expected that I’d be diagnosed with kidney disease. But, after a referral to Johns Hopkins for care, doctors started me on dialysis right away. That’s when my long, difficult road with kidney disease began. Shortly after starting dialysis treatments – despite receiving the best care possible – I fell into a 31-day coma that [...]

Letter to the Editor: Kidney disease patients are in need of new Medigap Expansion bill

2024-03-29T01:10:14+00:00July 28th, 2021|Categories: Patient Ambassadors, Patient Stories in the News|

As a kid, I remember watching my dad receive his dialysis treatments at home. Kidney disease runs in my family, and tragically it has taken not only my dad’s life, but many others in my family before their time. I received my own kidney disease diagnosis almost 20 years ago. Medical costs are rising and continue to rise for kidney patients, and it is a challenge to overcome the obstacles of what insurance does not cover. However, Medicare doesn’t always cover the cost of care for kidney disease patients under the age of 65, and many people can’t afford to pay [...]

Bill helps kidney patients get needed coverage

2024-03-29T01:10:14+00:00July 21st, 2021|Categories: Patient Stories in the News|

Starting dialysis in 2016 showed me there are a lot of challenges patients with end-stage renal disease (ESRD) face. There are major lifestyle differences, and treatments take several hours multiple days each week. While I can do these treatments from home at night, lots of other patients need to make trips to their local clinics, which takes an exhausting toll. One of the biggest challenges for many patients, though, is the cost of the treatments and medications. Over time, those costs get overwhelming and can force patients and families to make difficult decisions that they should never have to worry [...]

Kidney patients need Medigap expansion

2024-03-29T01:10:14+00:00July 16th, 2021|Categories: Patient Stories in the News|

While my husband was on dialysis, and even since his kidney transplant, getting affordable coverage has felt impossible. If Medicare doesn’t cover something, we have to scramble to afford it, which was a massive challenge given his dialysis treatments got up to $15,000 and medications can cost $3,000 each month. This shouldn’t happen. We need lawmakers to pass bills that make coverage more accessible for patients, like the Jack Reynolds Memorial Medigap Expansion Act. It would help make Medigap coverage more accessible to dialysis patients under 65, so they don’t go through what my husband and I have. Patients can’t [...]

Letter: Congress should expand Medigap coverage

2024-03-29T01:10:14+00:00July 15th, 2021|Categories: Patient Stories in the News|

For a lot of patients, starting dialysis means not being able to work anymore. Thankfully, with my job I can work from home when I’m doing my treatments, which has been hugely beneficial in helping me stay employed and get the coverage I need. The situation is very different for a lot of other patients, though, who can’t continue to work and get coverage. Instead, they rely solely on Medicare, which means if Medicare doesn’t fully cover a treatment or medication, they pay big out-of-pocket costs. That’s why we need Congress to pass bills like the Jack Reynolds Memorial Medigap [...]

Voice of the Reader: Support the Jack Reynolds Memorial Medigap Expansion Act

2024-03-29T01:10:14+00:00July 7th, 2021|Categories: Patient Stories in the News|

To the Editor: There is a bill which would expand Medigap Coverage to Illinois patients who need it. My story with kidney disease goes back more than 10 years to when my mom stepped in and donated one of her kidneys to me. While that was an invaluable gift on her part, that transplant failed a few years ago, and I was put on aggressive medication that meant I was given a choice between my kidneys and my life. My own struggles have made me want to be there for others who are worse off than me. While I thankfully [...]

Dialysis patients need new Medigap bill

2024-03-29T01:10:14+00:00July 1st, 2021|Categories: Patient Stories in the News|

I was diagnosed with End Stage Renal Disease (ESRD) in 2016 when my kidneys began to fail. While I was undergoing dialysis, I received full coverage for my treatments and medications through disability insurance, but many other patients aren’t fortunate to have coverage and are left to pay massive medical bills. Thankfully, help is on the way. The Jack Reynolds Memorial Medigap Expansion Act, a bipartisan bill in Congress, would help dialysis patients who worry about their cost of care. This bill would expand Medigap coverage for dialysis patients under 65 so that every patient can get the treatments and [...]

Letters to the Editor

2024-03-29T01:10:14+00:00June 27th, 2021|Categories: Patient Stories in the News|

One certainty in life is that all of us will be tested by circumstances out of our control. For me, it was kidney failure, and since 2007 I've been on dialysis. I'm very blessed that I was able to receive this care, and that I've been able to live a healthy and happy life thanks to the support of a loving family. However, a lot of dialysis patients today can't afford the lifesaving treatments they need. That's why it is so important to pass the Jack Reynolds Memorial Medigap Expansion Act, a bill that would expand coverage for out-of-pocket costs [...]

Medigap expansion could clear major obstacle for kidney patients

2024-03-29T01:10:14+00:00June 24th, 2021|Categories: Patient Stories in the News|

After three difficult years on dialysis, I received a kidney transplant last fall through the Department of Veteran Affairs as a Marine Corps veteran. While I don't have dialysis treatments anymore, I keep touch with everyone I met at my dialysis center and find new ways to help patients. In these conversations, one topic seems to come up more than just about any other: high costs. Navigating Medicare, which many dialysis patients need for treatments, is a tricky and confusing process that gets more complicated if you don't have Medigap insurance to cover what Medicare doesn't. Sadly, that's the reality [...]

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