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DPC’s Letter to Hon. Chiquita Brooks-LaSure, Administrator for CMS, on Move Toward Medically Necessary Dental Care

2024-03-29T01:09:22+00:00August 25th, 2022|Categories: Comment Letter, Dental Coverage, Medicare Advantage, Protect Patient Care|

August 25, 2022 Hon. Chiquita Brooks-LaSure, Administrator Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, MD  21244 Re: CMS-1770-P (Section II.L.) Dear Administrator Brooks-LaSure: Dialysis Patient Citizens (DPC) writes to offer its comments on the above referenced proposed rule. DPC's membership, currently over 30,000, is restricted to kidney disease patients and their family members. DPC is a patient-led organization.  Our by-laws require that the President, Vice President and at least 51% of the Board be current dialysis patients.  The non-dialysis patients serving on our Board are former dialysis patients with kidney transplants. Our volunteer board members have represented [...]

Dialysis patients need expanded coverage for leftover costs

2024-03-29T01:09:22+00:00August 21st, 2022|Categories: Medigap Coverage, Patient Stories in the News|

In 2017, I had a below-knee leg amputation, during which it was discovered my kidneys had deteriorated. These health crises forced me to undergo physical rehabilitation and begin dialysis treatments for my kidneys. While receiving dialysis, I started writing my book on navigating midlife, which was a form of mental therapy. My book discusses my triumphs and trials as an amputee on dialysis. One of the struggles that I faced, and other kidney patients do as well, is covering the 20% of dialysis that Medicare doesn’t cover. Kidney patients under 65 don’t always have access to private insurance or Medigap [...]

Action Alert – Protect ESRD Patient Access to Private Coverage

2024-03-29T01:09:22+00:00August 19th, 2022|Categories: Article, Private Insurance Coverage, Protect Patient Care, Take Action|

Ask your representative to co-sponsor H.R. 8594/S. 4750, legislation that would protect ESRD patients by allowing them to maintain private, employer health coverage up to 30 months after diagnosis with kidney failure. A recent Supreme Court ruling now threatens their access to private coverage by permitting health plans to carve off dialysis benefits from their networks and impose restrictive terms on kidney patients.  The continuation of high-quality care and benefits during this 30-month coordination period helps kidney patient’s successfully transition into life on dialysis and/or kidney transplantation. Leave your legacy through advocacy and urge your representative to co-sponsor this life-saving legislation and restore the protections [...]

DPC’s Letter to Hon. Chiquita Brooks-LaSure, Administrator for CMS

2024-03-29T01:09:22+00:00August 18th, 2022|Categories: Comment Letter, Medicare Advantage, News, Protect Patient Care, Quality Incentive Program, Uncategorized|

August 18, 2022 Hon. Chiquita Brooks-LaSure, Administrator Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, MD  21244 Re:       End Stage Renal Disease (ESRD) Prospective Payment System (PPS) Calendar Year (CY) 2023 Proposed Rule (CMS-1768-P) Dear Administrator Brooks-LaSure: Dialysis Patient Citizens (DPC) writes to offer its comments on the above referenced proposed rule. DPC's membership, currently over 30,000, is restricted to kidney disease patients and their family members. DPC is a patient-led organization.  Our by-laws require that the President, Vice President and at least 51% of the Board be current dialysis patients.  The non-dialysis patients serving on our Board [...]

DPC Submits Comments on Medicare’s 2022 ESRD Payment Rule

2024-03-29T01:09:22+00:00August 18th, 2022|Categories: Article, Comment Letter, Medicare Advantage, Protect Patient Care, Quality Incentive Program|

DPC’s comment letter on Medicare’s 2022 ESRD Payment Rule highlighted the impact that labor shortages may have on dialysis patients. “Currently, there are nearly two job openings for every available unemployed worker. Vulnerable patients need a labor market in which there is a one-to-one ratio of health care workers for vacancies in essential jobs. Over the long term, the government may need to act to foster interest among young people in healthcare careers and facilitate their preparation for such roles. But in the immediate term, it is necessary to ensure that wages for jobs like dialysis technicians are competitive.” DPC is [...]

Dialysis patients counting on Congress

2024-03-29T01:09:22+00:00August 8th, 2022|Categories: Patient Stories in the News, Private Insurance Coverage, Spotlight|

It’s quite the experience being a kidney patient on dialysis. There’s always new information to monitor and communication to track between various medical providers, dialysis centers, and health insurance entities. It’s important for patients to educate themselves on kidney disease to best serve themselves and others who are on dialysis. One area of dialysis that can be hard to navigate is health care coverage. As both a dialysis patient and transplant recipient, I’ve been fortunate to have both employer-sponsored insurance and coverage through the Department of Veterans Affairs. It’s essential that dialysis patients can remain on employer-sponsored insurance for 30 [...]

Medigap bill can help kidney patients

2024-03-29T01:09:22+00:00August 7th, 2022|Categories: Medigap Coverage, Patient Stories in the News, Spotlight|

When I started helping my dad after his kidney disease diagnosis, I thought it would be straightforward, taking him to the dialysis clinic and just generally caring for him. As I started learning more about the challenges kidney patients face, though, I remember looking around at all of the younger patients at his dialysis clinic and asking myself, “How on earth are they paying for this?” The answer for too many is that they can’t. In many states, Medicare only covers up to 80% of dialysis treatment, and Medigap plans to cover the remaining expense aren't accessible to patients under [...]

Dialysis Patient Citizens Applauds New Legislation Prohibiting Discrimination Against Dialysis Patients

2024-03-29T01:09:22+00:00August 1st, 2022|Categories: Medicare Advantage, Press Release, Private Insurance Coverage, Protect Patient Care|

WASHINGTON, D.C. (August 1, 2022) -- Dialysis Patient Citizens (DPC) today released the following statement applauding the introduction of H.R. 8594 by Representatives Yvette Clarke (D-NY-9), Buddy Carter (R-GA-1), Jodey Arrington, (R-TX-19), and Danny Davis (D-IL-7) to prohibit discrimination against dialysis patients in insurance coverage. “We thank Representatives Clarke, Carter, Arrington, and Davis for introducing this essential piece of legislation that will protect dialysis patients from facing unjust discrimination in their health coverage,” said DPC Board President Andrew Conkling. “Dialysis patients have a right to continue on employer-provided plans for 30 months after being diagnosed with End-Stage Renal Disease (ESRD), [...]

Rhode Island Medigap Legislation Signed by Governor McKee

2024-03-29T01:09:22+00:00July 21st, 2022|Categories: Article, Medicare Advantage, Medigap Coverage, State Advocacy|

On June 30,2022, Rhode Island Governor Dan McKee signed into law H. 7244 and S. 2194, which provide guaranteed issue access to Medicare Supplement Insurance coverage – known as Medigap – for under age 65 residents with End Stage Renal Disease (ESRD) and qualified disabled. The legislation becomes effective July 1, 2023. The new law also provides premium protections through the premium rate review process of the Office of the State Health Insurance Commissioner. While DPC is disappointed that this legislation limits access only to Medicare Supplement Plan A, we recognize this is a major step by Rhode Island that qualified [...]

Legislation Offers Hope for Kidney Patients Struggling with Coverage

2024-03-29T01:09:23+00:00July 21st, 2022|Categories: Medigap Coverage, Patient Stories in the News, Spotlight|

Kidney disease is a life-changing diagnosis for patients and their families. I experienced it first-hand as my husband went through dialysis and a kidney transplant, and I continue to see it every day working with kidney patients who are facing issues with treatments and cost. One of the most heartbreaking realities I see working with patients is that many are held back because they can’t get affordable coverage for the treatments they need to stay alive, since Medicare only covers part of the cost. That’s why we need Congress to pass the Jack Reynolds Memorial Medigap Expansion Act. The bill [...]

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