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Support S 2194

2024-03-29T01:10:08+00:00March 28th, 2022|Categories: Patient Ambassadors, Patient Stories in the News, Spotlight|

March 28, 2022 The Honorable Joshua Miller, Chair The Honorable Bridgett G. Valverde, Vice Chair The Honorable Valarie J. Lawson, Secretary Members, Senate Health and Human Services Committee Rhode Island General Assembly RE: Support S 2194 Dear Chair Miller, Vice Chair Valverde, Secretary Lawson, Members of the Committee: As a kidney dialysis patient residing in Woonsocket, a volunteer Patient Ambassador of Dialysis Patient Citizens and on behalf of the more than 1,800(i) fellow Rhode Island residents with End State Renal Disease (ESRD), I write to ask your support of S 2194, which will provide access to fair and equitable Medicare [...]

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DPC Urges Medicare Officials to Take Action on Dialysis Workforce Shortages

2024-03-29T01:10:09+00:00March 7th, 2022|Categories: Article, Comment Letter, Improve Access to Care, Increase Quality of Care, Medicare Advantage|

DPC has written to top Medicare officials asking that they develop policy options to address the current labor shortage. The letter notes that the lengthy rulemaking process used to update payments to healthcare providers is ill-suited to react to urgent changes in the labor market. Fourteen years ago, the prestigious Institute of Medicine warned that as Americans aged, there would be fewer workers to take care of more elderly and disabled individuals. DPC’s letter urges officials to take another look at the report, which recommended “wage pass through” components of provider payments to address rising wages and delegating more responsibilities to [...]

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Final ESCO Evaluation Documents Care Coordination Success Story

2024-03-29T01:10:09+00:00March 2nd, 2022|Categories: Article, Increase Quality of Care, Medicare Advantage, Protect Patient Care|

Medicare’s Comprehensive ESRD Care Model was designed to identify, test, and evaluate new ways to improve care for End-Stage Renal Disease (ESRD) patients. It established ESRD Seamless Care Organizations (ESCOs) that brought dialysis clinics and nephrologists together to coordinate patients’ kidney- and non-kidney care. This demonstration project ended last year and was replaced by a similar one this year. The Medicare Innovation Center has released the final evaluation report for the ESCOs. Overall, the ESCOs showed modest but statistically significant results over the five performance years, reducing Medicare expenditures. The number of hospitalizations decreased 3% and the percent of beneficiaries with [...]

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HB 430 – Letter of Support

2024-03-29T01:10:09+00:00February 28th, 2022|Categories: Patient Ambassadors, Patient Stories in the News, Spotlight|

February 28, 2022 The Honorable Bart Rowland, Chair The Honorable Derek Lewis, Vice Chair House Banking & Insurance Committee Kentucky General Assembly 700 Capitol Avenue Frankfort, KY 40601 RE: HB 430 - SUPPORT Dear Chair Rowland, Vice Chair Lewis and Members of the Committee: My name is James O. “Hap” Strunk. I am a resident of Whitley City, serve as Chairman of the Kentucky Board of Embalmers & Funeral Directors, and also one of the more than 9,000 (i) Kentuckians with End Stage Renal Disease (ESRD). From my volunteer role as a Patient Ambassador for Dialysis Patient Citizens, I write [...]

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Don’t Forget to Apply for DPC’s 2022 Advocacy Day!

2024-03-29T01:10:09+00:00February 22nd, 2022|Categories: Advance Patient Choice, Improve Access to Care, Increase Quality of Care, News, Promote Financial Security, Protect Patient Care, Take Action|

DPC is pleased to invite you to apply for our 2022 Advocacy Day. Please apply by February 25th. Each year, Dialysis Patient Citizens is excited to host a Congressional Advocacy Day for kidney patients and transplant recipients to meet with their federal legislators and talk about issues that affect their quality of care. Historically, our members have come to Washington, D.C., to meet with their Congressional Members in person. However, we are conducting a virtual "fly-in" in 2022 due to the ongoing Covid-19 pandemic in order to ensure the safety of our participants. We will be hosting our Congressional Advocacy Day [...]

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2022’s State Advocacy Kick-Off

2024-03-29T01:10:09+00:00February 17th, 2022|Categories: Access to Transplant, Article, Medicare Advantage, Medigap Coverage, Promote Financial Security, State Advocacy, Transplant Donor Protection|

It’s been a busy start in 2022 for DPC’s state advocacy efforts. While many states are holding shorter legislative sessions due to the upcoming primary elections, bills impacting dialysis patients are being introduced and moving quickly through the legislative process. Legislation to expanded Medigap access has already been introduced in Arizona, Kentucky, Nebraska, Maryland, New Jersey, Rhode Island, and Vermont. Improving access to Medicare supplementary (Medigap) plans is a top policy priority for DPC, and we are pleased that multiple states are considering how they can help, particularly in states that have limited or no access to Medigap for the under [...]

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Patients with Kidney Disease Need Medigap Expansion Bill

2024-03-29T01:10:09+00:00February 9th, 2022|Categories: Patient Stories in the News|

Kidney disease is a life-changing diagnosis. Since I went into renal failure, I’ve believed that patients should only have to worry about the care they need to get well, not the high costs that come with it. Unfortunately, that isn’t the reality I’ve encountered, given my insurance and Medicare don’t cover the full costs of the life-saving treatments and medications I need to fight my kidney disease. Thankfully, Congress is considering a bill that would help kidney disease patients like me. The Jack Reynolds Memorial Medigap Expansion Act would open Medigap coverage to patients under 65, so that we can [...]

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New Bill Will Give Dialysis Patients the Security They Deserve

2024-03-29T01:10:10+00:00February 4th, 2022|Categories: Patient Stories in the News|

For six and a half years, I lived through the daily struggles of dialysis and the challenges of getting quality care before I finally received a kidney transplant in 2009. The coverage I received while on dialysis simply wasn’t enough to pay for all of the medications I needed because I was under the age of 65 and did not have access to Medigap insurance. A new bill, the Jack Reynolds Memorial Medigap Expansion Act, would help prevent this from happening to other patients by expanding Medigap coverage to dialysis patients under 65 so that no one has to choose [...]

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Medicare Kicks Off New Kidney Care Demonstration Project

2024-03-29T01:10:10+00:00February 1st, 2022|Categories: Access to Transplant, Article, Increase Quality of Care, Medicare Advantage, News, Promote Financial Security, Treatment Options|

The Center for Medicare and Medicaid Innovation has announced 85 sites for its Kidney Care Choices (KCC) Demonstration Project, which started January 1, 2022. The program, initially announced by President Donald Trump in July 2019, is intended to “help health care providers reduce the cost and improve the quality of care for patients with late-stage chronic kidney disease and ESRD… and to delay the need for dialysis and encourage kidney transplantation.” KCC consists of two separate programs. In Kidney Care First (KCF), participating nephrology practices receive payments on a per-patient basis for managing the care of patients with late-stage chronic kidney [...]

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DPC Responds to Medicare Officials’ Request for Information on Transplants and Home Modalities

2024-03-29T01:10:10+00:00January 31st, 2022|Categories: Access to Transplant, Advance Patient Choice, Article, Improve Access to Care, Medicare Advantage, Treatment Options|

The Centers for Medicare & Medicaid Services are preparing new initiatives to promote transplant and home dialysis, and asked the public for recommendations. The request came as part of the President’s Executive Orders “to advance health equity and improve health outcomes for people in need of a life-saving transplant and dialysis,” according to Health and Human Services Secretary Xavier Becerra. DPC responded to several elements of the request. Equity in Organ Transplantation – DPC reiterated its position, shared by many experts, that Medicare should supplement payments on behalf of disadvantaged patients so providers can give them extra assistance in seeking transplants. [...]

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