Protect Patient Care Archives - Dialysis Patient Citizens

Federal Officials Update Kidney Community on Baxter Hurricane Recovery
Gallery

Federal Officials Update Kidney Community on Baxter Hurricane Recovery

Hannah Bracamonte2024-10-24T12:58:01+00:00October 23rd, 2024|Categories: Article, News, Protect Patient Care|

Officials from the US Department of Health and Human Services updated kidney care leaders on the fallout from hurricane damage to Baxter’s North Caroline plant. A representative of the Assistant Secretary for Preparedness and Response said that it is working with the FDA and Baxter to mitigate shortages of fluids for dialysis patients. The government has invoked the Defense Production Act to ensure that Baxter has the materials needed to clean up their facility. Two other companies are increasing production to their full capacity to bring additional products to market. Products from Baxter’s overseas facilities are being airlifted to the US, [...]

Private Insurance for Dialysis Care Introduced in the Senate
Gallery

Private Insurance for Dialysis Care Introduced in the Senate

Hannah Bracamonte2024-09-26T14:10:02+00:00September 25th, 2024|Categories: Advance Patient Choice, Article, Improve Access to Care, Private Insurance Coverage, Promote Financial Security, Protect Patient Care|

Senators Bill Cassidy (R-LA), Cory Booker (D-NJ) and Martin Heinrich (D-NM) recently introduced The Restore Protections for Dialysis Patients Act (S. 5018), which is the Senate companion to H.R. 6860 introduced earlier this year. If you are a dialysis patient, you may be eligible for Medicare, but you also have the right to keep your private employer-sponsored health insurance for up to 30 months after being diagnosed with kidney failure. However, a recent U.S. Supreme Court decision could limit your access to private coverage by allowing health plans to cut dialysis benefits from their networks and impose stricter rules. Along [...]

DPC Comments to CMS Sound Alarm on Workforce Shortages
Gallery

DPC Comments to CMS Sound Alarm on Workforce Shortages

Hannah Bracamonte2024-08-22T14:11:27+00:00August 20th, 2024|Categories: Article, Comment Letter, Innovation, Medicare Advantage, Promote Financial Security, Protect Patient Care|

In our comments responding to Medicare’s annual ESRD Payment Rule, DPC took the government to task over payment updates that lag increases in labor costs and failure to effectively cover new drugs for dialysis patients. The proposed rule grants a net increase in the base rate of only 0.8% during a year in which wages, according to Bureau of Labor Statistics, rose 4.2%. The Medicare Payment Advisory Commission estimates a margin of zero for dialysis facilities in 2024, with many rural and low-volume facilities in the red. This occurs at a time in which a Supreme Court decision has emboldened [...]

DPC’s Letter to Hon. Chiquita Brooks-LaSure, Administrator for CMS, on CMS-1805-P
Gallery

DPC’s Letter to Hon. Chiquita Brooks-LaSure, Administrator for CMS, on CMS-1805-P

Hannah Bracamonte2024-08-19T16:23:37+00:00August 19th, 2024|Categories: Comment Letter, Improve Access to Care, Increase Quality of Care, Policy Issues, Promote Financial Security, Protect Patient Care|

August 19, 2024 Hon. Chiquita Brooks-LaSure, Administrator Centers for Medicare & Medicaid Services 7500 Security Boulevard Baltimore, MD 21244 Re: CMS-1805-P: End-Stage Renal Disease Prospective Payment System, Payment for Renal Dialysis Services Furnished to Individuals with Acute Kidney Injury, Conditions for Coverage for End-Stage Renal Disease Facilities, End-Stage Renal Disease Quality Incentive Program, and End-Stage Renal Disease Treatment Choices Model Dear Administrator Brooks-LaSure: Dialysis Patient Citizens (DPC) writes to offer its comments on the above referenced proposed rule. DPC's membership, currently about 35,000, is restricted to kidney disease patients and their family members. DPC is a patient-led organization. Our by-laws require [...]

Indiana Governor Signs Affordable Medigap Access Legislation
Gallery

Indiana Governor Signs Affordable Medigap Access Legislation

Hannah Bracamonte2024-08-22T14:12:38+00:00August 16th, 2024|Categories: Article, Medigap Coverage, Protect Patient Care, State Advocacy|

In a major victory for under-age 65 dialysis patients in Indiana, Governor Eric Holcomb signed SB 215 in a formal bill signing ceremony on August 15, 2024. Attending this ceremonial bill signing was DPC Patient Ambassador Arthur Hill and DPC Eastern Region Advocacy Director Elizabeth Lively. Arthur’s impactful story of his dialysis journey elevated the voices of dialysis patients in Indiana, bringing the struggles of dealing with kidney failure to the forefront and influencing the hearts and minds of legislators to support SB 215. SB 215 becomes effective on December 31, 2024. This legislation provides access for under-age 65 dialysis [...]

DPC Advocates for Dialysis Patients at National Conference of State Legislators Summit
Gallery

DPC Advocates for Dialysis Patients at National Conference of State Legislators Summit

Hannah Bracamonte2024-08-22T14:12:44+00:00August 8th, 2024|Categories: Article, Medigap Coverage, Protect Patient Care, State Advocacy|

State legislators from across the nation convened in Louisville, Kentucky August 5-8 for the 50th National Conference of State Legislators Summit. As part of DPCs ongoing work in the states, DPC was on hand to share our critically important work on access to affordable Medigap coverage. Megan Hashbarger, VP of Government Relations, Yolonda Brisbane, Grassroots Manager, and Elizabeth Lively, Eastern Region Advocacy Director attended the event. We heard so many stories from interested state legislators who either a family member or friend dealing with kidney disease issues. Legislators from Arkansas, California, Georgia, Iowa, Kentucky, Maryland, Michigan, New Mexico, Ohio, Oklahoma and [...]

State Advocacy Update – Council of State Governments Meetings
Gallery

State Advocacy Update – Council of State Governments Meetings

Hannah Bracamonte2024-07-25T17:45:31+00:00July 25th, 2024|Categories: Advance Patient Choice, Article, Improve Access to Care, Increase Quality of Care, Medigap Coverage, News, Policy Issues, Promote Financial Security, Protect Patient Care, State Advocacy|

DPC’s two State Advocacy Directors have been busy advocating for dialysis patients this summer. Pamela Zielske, DPC’s Western Region Advocacy Director, attended the 77th Council of State Governments Annual Meeting in Portland, Oregon earlier this month. The event provided an outstanding opportunity to cultivate relationships with state legislators and attend policy sessions and legislative learning labs, including one hosted by Fresenius Medical Care on Improving Equity and Health Outcomes in Kidney Health Care. With legislators in attendance from 13 western states, the CSG West Meeting was a tremendous opportunity to elevate our advocacy work on behalf of dialysis patients with [...]

DPC Asks Medicare Officials to Reverse Pruritis Drug Fiasco
Gallery

DPC Asks Medicare Officials to Reverse Pruritis Drug Fiasco

Hannah Bracamonte2024-06-27T14:45:47+00:00June 12th, 2024|Categories: Advance Patient Choice, Article, Increase Quality of Care, Innovation, Protect Patient Care, Treatment Options|

In a letter to the Center for Medicare and Medicaid Services (CMS), Dialysis Patient Citizens (DPC) asked for a “do-over” in the rollout of Korsuva, a drug that treats ESRD-related pruritis. Medicare makes an add-on payment for new drugs that expires after two years, leaving uncertainty about how providers can offer such drugs to patients when that period ends. This uncertainty discouraged nephrologists from prescribing the medication. Empirical research has found a prevalence of moderate to severe pruritis among dialysis patients of 33 percent, but Korsuva has been dispensed to fewer than one percent of patients. In the letter, several DPC [...]

DPC’s Letter to Hon. Jonathan Blum, Principal Deputy Administrator for CMS, on New Drugs in the ESRD PPS
Gallery

DPC’s Letter to Hon. Jonathan Blum, Principal Deputy Administrator for CMS, on New Drugs in the ESRD PPS

Hannah Bracamonte2024-06-27T14:42:14+00:00June 11th, 2024|Categories: Advance Patient Choice, Comment Letter, Increase Quality of Care, Innovation, Protect Patient Care, Treatment Options|

June 11, 2024 The Honorable Jonathan Blum Principal Deputy Administrator Centers for Medicare & Medicaid Services 200 Independence Avenue, SW Washington, DC 20515 Re: New drugs in the ESRD PPS Dear Principal Deputy Administrator Blum: In our comments on the 2024 ESRD payment rule, we expressed our concerns about how patients experienced the rollout of Korsuva, the drug that treats ESRD-related pruritis. We noted that the prescribing behavior of nephrologists has amounted to, in effect, a de facto embargo of the medication. Empirical research has found a prevalence of moderate to severe pruritis among dialysis patients of 33 percent, but [...]

DPC’s 2024 Advocacy Day
Gallery

DPC’s 2024 Advocacy Day

Hannah Bracamonte2024-05-23T14:34:34+00:00May 20th, 2024|Categories: Advance Patient Choice, Article, Get Involved, Improve Access to Care, Increase Quality of Care, Medigap Coverage, News, Patient Ambassadors, Private Insurance Coverage, Promote Financial Security, Protect Patient Care|

Earlier this month, DPC hosted our annual Advocacy Day in Washington, D.C. where we bring together patients, family members, and care givers to meet with their Members of Congress to elevate the patient story for dialysis patients. This year we had 65 advocates attend, representing 25 states, who had almost 80 Congressional meetings. Our patients spoke to Congressional offices asking them to support H.R. 6860 – The Restore Protections for Dialysis Patients Act and H.R. 5027 – The Chronic Kidney Disease Improvement in Research and Treatment Act. These two bills would allow dialysis patients access to private insurance and Medigap [...]

Dialysis Patient Citizens

Recent News