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DPC’s Letter to Mr. Abe Sutton, Deputy Administrator at Center for Medicare & Medicaid Innovation, on CKCC Revisions

2025-07-09T18:20:20+00:00July 9th, 2025|Categories: Comment Letter, Improve Access to Care, Policy Issues, Promote Financial Security, Protect Patient Care|

July 9, 2025 Mr. Abe Sutton, Deputy Administrator Center for Medicare & Medicaid Innovation 7500 Security Boulevard Baltimore, MD  21244 Re: CKCC Revisions Dear Mr. Sutton: We are writing to protest the recent changes to the CKCC model that manifest a reduced CMMI commitment to integrated kidney care. As a former CMMI staffer, a consumer representative on the governing body of one the CKCC sites, and a longtime health policy analyst and patient advocate, I can see CMMI programs from a global perspective, and what I see is a relegation of our patient population to a second-tier focus despite it being [...]

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Dialysis Patient Citizens Applauds Texas Legislature for Passing Historic Bill Expanding Affordable Medigap Access for Dialysis and ALS Patients

2025-06-24T17:52:36+00:00June 23rd, 2025|Categories: Medigap Coverage, Patient Ambassadors, Press Release, Promote Financial Security, Protect Patient Care, State Advocacy|

Austin, TX (June 23, 2025) – House Bill 2516 has become public law, a significant victory for Texans living with End-Stage Renal Disease (ESRD), or kidney failure, and Amyotrophic Lateral Sclerosis (ALS). The legislation, championed by Representative Ryan Guillen (R-TX-31), received overwhelming bipartisan support in the Texas State Legislature, passing the House with a 133-4 vote and the Senate unanimously. The law guarantees that ESRD and ALS patients under the age of 65 can access affordable Medigap insurance. Specifically, Medigap Plans A, B, and D will be available at the same premium rate as for those age 65, while the [...]

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Medigap Protections become Law in Nevada and Texas

2025-06-25T13:56:23+00:00June 23rd, 2025|Categories: Article, Medigap Coverage, Patient Ambassadors, Promote Financial Security, Protect Patient Care, State Advocacy|

Two historic bills that expand affordable access to Medicare Supplement Insurance coverage, otherwise known as Medigap, have passed with overwhelming support in the states of Nevada and Texas this legislative session. Both bills provide affordable access to Medigap plans for dialysis patients who are under age 65. Sponsored and championed by Nevada State Senator, Roberta Lange (D-NV-7) and signed at the beginning of June by Governor Joe Lombardo (R-NV) Senate Bill 292 guarantees access to affordable Medigap coverage to Nevadans who are under age 65 and on dialysis. SB 292 fills a devastating gap in Medicare coverage for Nevadans who had [...]

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Rhode Island Passes Birthday Rule and Evaluates Community Rating for Medigap Plans

2025-06-25T14:04:54+00:00June 20th, 2025|Categories: Article, Medicare Advantage, Medigap Coverage, Promote Financial Security, Protect Patient Care, State Advocacy|

On Friday, June 20, the Rhode Island House passed SB610, Sub B, joining the Senate in approving a birthday rule and evaluation of adopting community rating for all Medicare Supplement plans.  SB 610 is awaiting the Governor’s signature. SB 610 does a number of things, including establishing a guaranteed-issue 6-month open enrollment period for individuals under-age 65 enrolled in a Medicare supplement (Medigap) plan who wish to switch to a different plan upon turning age 65.  While all individuals turning age 65 who enroll in Medicare Part B are entitled to this 6-month open enrollment period, this language eliminates any confusion [...]

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Delaware Unanimously Passes Medigap Birthday Rule

2025-06-25T13:59:21+00:00June 13th, 2025|Categories: Article, Medicare Advantage, Medigap Coverage, Promote Financial Security, Protect Patient Care, State Advocacy|

With a unanimous vote in the Delaware House of Representatives on June 12, the Delaware General Assembly has unanimously passed SB 71 in both chambers. This legislation, called a birthday rule, creates a special open enrollment window for persons already enrolled in a Medicare Supplement policy (also called Medigap) to switch to another plan that provides the same or lesser benefits, allowing Enrollees to find a plan that better fits their financial circumstances. Further, this bill allows those on Medicare Advantage plans to switch back to Medicare Supplement coverage, but does include a pre-existing condition limitation.  The special open enrollment window [...]

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Dialysis Patient Citizens Applauds Nevada Governor Signing Legislation Expanding Access to Affordable Medigap Coverage for Dialysis Patients

2025-06-09T17:58:42+00:00June 9th, 2025|Categories: Medigap Coverage, Patient Ambassadors, Press Release, Promote Financial Security, Protect Patient Care, State Advocacy|

Carson City, NV (June 9, 2025) – Governor Joe Lombardo (R-NV) and the Nevada State Legislature have taken a historic step to ensure affordable access to Medicare Supplement Insurance plans, also known as Medigap, to Medicare enrollees under age 65, including Nevada residents with End-Stage Renal Disease (ESRD). Senate Bill 292, sponsored and championed by Senator Roberta Lange (D-NV-7), passed the Senate unanimously and the Assembly with overwhelming bipartisan support (39-3), and it was signed into law by Governor Lombardo. SB 292 guarantees that dialysis patients under 65-years-old in Nevada have access to affordable Medigap coverage, filling dire gaps in [...]

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Texas Medigap Update – May 2025

2025-05-22T19:46:41+00:00May 22nd, 2025|Categories: Article, Medigap Coverage, Promote Financial Security, Protect Patient Care, State Advocacy|

Texas House Bill 2516 was unanimously approved by the House Insurance Committee and passed off the House Floor with overwhelming bipartisan support (130-19). This legislation, which will provide affordable access to Medicare Supplement Insurance (Medigap) to individuals who are under age 65 with ESRD, is now in the Texas Senate. HB 2516 recently passed unanimously out of the Senate Health and Human Services Committee and is expected to be heard on the Senate Floor shortly. Throughout the legislative process, we’ve had nearly 20 Texas legislators join author Representative Ryan Guillen to support this important bill. Many thanks to all of [...]

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DPC Submits Letter to HRSA on Out-of-Sequence Organ Donation

2025-05-22T17:13:52+00:00May 22nd, 2025|Categories: Access to Transplant, Advance Patient Choice, Article, Protect Patient Care|

On May 21, 2025, DPC submitted a letter to Thomas J. Engels, Administrator at the Health Resources and Services Administration (HRSA), expressing concern about the growth in out-of-sequence organ transplants reported in a recent New York Times article. The article outlines a recent shift in the transplant system, where someone’s ranking on the transplant list may be ignored and instead the organ is given to a patient further down the list, usually due to easier coordination for the transplant. As a patient-led organization whose board is comprised of dialysis and kidney transplant patients, DPC is alarmed at the reported rate [...]

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DPC’s Letter to Thomas J. Engels, Administrator at Health Resources and Services Administration, on Out-of-Sequence Organ Allocations

2025-05-21T20:16:46+00:00May 21st, 2025|Categories: Advance Patient Choice, Article, Improve Access to Care, Increase Quality of Care, Protect Patient Care|

May 21, 2025 Thomas J. Engels, Administrator Health Resources and Services Administration 5600 Fishers Lane Rockville, MD 20857 Re:      Out-of-Sequence Organ Allocations Dear Administrator Engels: Dialysis Patient Citizens (DPC) writes to express our concerns about the growth in out-of-sequence organ transplants reported in a recent New York Times article. DPC's membership, currently about 35,000, is restricted to kidney disease patients and their family members. DPC is a patient-led organization.  Our by-laws require that the President, Vice President and at least 51% of the Board be current dialysis patients.  The non-dialysis patients serving on our Board are former dialysis patients with [...]

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Nevada Medigap Update – May 2025

2025-05-22T17:19:44+00:00May 19th, 2025|Categories: Article, Medigap Coverage, Patient Ambassadors, Promote Financial Security, Protect Patient Care, State Advocacy|

After unanimous passage in the Nevada State Senate, the Nevada Assembly Committee on Commerce and Labor unanimously approved Senate Bill 292 on May 16th. Sponsored by State Senator Roberta Lange (NV-7), this important legislation will provide access to affordable Medicare Supplement Insurance, otherwise known as Medigap to the under age 65 Medicare eligible population. Currently individuals under age 65 in the state of Nevada who are eligible for Medicare as a result of End Stage Renal Disease or by disability are not able to access Medigap coverage. Nevada resident and DPC Patient Ambassador, Chuck Lizer, shared his story with the [...]

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