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Action Alert: H.R. 5027/S. 4469 – The Chronic Kidney Disease Improvement in Research and Treatment Act

2024-06-27T14:07:34+00:00June 25th, 2024|Categories: Article, Improve Access to Care, Increase Quality of Care, Medigap Coverage, Promote Financial Security, Quality Incentive Program, Take Action|

The Chronic Kidney Disease Improvement in Research and Treatment Act (H.R. 5027/S. 4469) sets the stage for the future of kidney care. Representatives Carol Miller (R-WV) and Terri Sewell (D-AL)  re-introduced the bill in the House of Representatives on July 28, 2023 and Senators Ben Cardin (D-MD) and Marsha Blackburn (R-TN) re-introduced the bill in the Senate on June 5, 2024. If passed, this legislation would improve efforts to prevent and better understand chronic kidney disease (CKD) by ensuring appropriate reimbursement for quality care and improve patient access to the best drugs, technology and innovations along the kidney care continuum. One [...]

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DPC Advocates Make Their Voices Heard!

2024-03-29T01:09:11+00:00February 21st, 2024|Categories: Article, Get Involved, Patient Ambassadors, Patient Stories in the News, Patient's Voice, Private Insurance Coverage, Promote Financial Security, Take Action|

DPC’s patient advocates are working hard to make their voices heard through media outreach, by sharing their stories through op-eds and letters to the editor. Coast to coast, patients are letting their local legislators know about the issues that are important to them, and how their votes in Congress affect their lives. Check out the amazing work of our advocates, and if you’re feeling inspired, we encourage you get involved! Learn to how to become a Patient Ambassador and other ways DPC can help you make your voice heard.

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Action Alert – Protect ESRD Patient Access to Private Coverage

2024-03-29T01:09:12+00:00February 1st, 2024|Categories: Article, Private Insurance Coverage, Promote Financial Security, Take Action|

In December, The Restore Protections for Dialysis Patients Act (H.R. 6860) was introduced by Representatives Mike Kelly (R-PA), Yvette Clarke (D-NY), Neal Dunn, MD (R-FL), Danny Davis (D-IL), John Joyce, MD (R-PA) and Raul Ruiz, MD (D-CA) to help ensure that  ESRD patients can stay on the insurance coverage of their choice. A recent U.S. Supreme Court decision threatens access to private coverage by permitting health plans to carve off dialysis benefits from their networks and impose restrictive terms on patients. This legislation would restore the protections Congress intended to guarantee for over 40 years. DPC has been compiling Letters to [...]

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2024 Advocacy Day – 24 Hours Left to Apply!

2024-03-29T01:09:12+00:00January 25th, 2024|Categories: Advance Patient Choice, Article, Get Involved, Improve Access to Care, Increase Quality of Care, Patient Ambassadors, Policy Issues, Promote Financial Security, Protect Patient Care, Take Action|

Dialysis Patient Citizens (DPC) will host our 20th Anniversary Celebration and Annual Congressional Advocacy Day May 6-7, 2024. Participants will be selected based on the quality of their applications, legislative priorities, and previous involvement in DPC's advocacy efforts. We will hold a training session ahead of our congressional meeting for those participating to explain the process and review our current legislative “asks.” The application period is open until January 26, 2024. We just ask that you tell us a little about yourself and why you think you would be a good candidate for this incredible opportunity. We will make a decision [...]

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Reminder – 24 Hours Left to Apply!

2024-03-29T01:09:18+00:00March 30th, 2023|Categories: Article, Get Involved, Policy Issues, Take Action|

Dialysis Patient Citizens (DPC) will host our Annual Congressional Advocacy Day on October 23, 2023. Participants will be selected based on the quality of their applications, legislative priorities, and previous involvement in DPC's advocacy efforts. We will hold a training session ahead of our congressional meeting for those participating, both virtually and in-person, to explain the process and review our current legislative “asks.” The application period is open until March 31, 2023. We just ask that you tell us a little about yourself and why you think you would be a good candidate for this incredible opportunity. We will make a [...]

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DPC Continues Outreach to Protect Patients’ Rights

2024-03-29T01:09:21+00:00September 6th, 2022|Categories: Advance Patient Choice, Article, Private Insurance Coverage, Protect Patient Care, Take Action, Treatment Options|

DPC Members and Patient Ambassadors continue advocacy on H.R. 8594/S. 4750 - The Restore Protections for Dialysis Patients Act, which would codify into law the right for dialysis patients to stay on their private insurance for up to 30 months, if they should so choose. This bill not only preserves patient choice but also encourages insurers to detect and treat kidney disease early and, most importantly, protects kidney disease patients from discrimination. This legislation reinstates the importance of allowing kidney patients to decide which health insurance will best serve them. For more information, to watch patient testimonials, or to take action, [...]

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Action Alert – Protect ESRD Patient Access to Private Coverage

2024-03-29T01:09:22+00:00August 19th, 2022|Categories: Article, Private Insurance Coverage, Protect Patient Care, Take Action|

Ask your representative to co-sponsor H.R. 8594/S. 4750, legislation that would protect ESRD patients by allowing them to maintain private, employer health coverage up to 30 months after diagnosis with kidney failure. A recent Supreme Court ruling now threatens their access to private coverage by permitting health plans to carve off dialysis benefits from their networks and impose restrictive terms on kidney patients.  The continuation of high-quality care and benefits during this 30-month coordination period helps kidney patient’s successfully transition into life on dialysis and/or kidney transplantation. Leave your legacy through advocacy and urge your representative to co-sponsor this life-saving legislation and restore the protections [...]

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Don’t Forget to Apply for DPC’s 2022 Advocacy Day!

2024-03-29T01:10:09+00:00February 22nd, 2022|Categories: Advance Patient Choice, Improve Access to Care, Increase Quality of Care, News, Promote Financial Security, Protect Patient Care, Take Action|

DPC is pleased to invite you to apply for our 2022 Advocacy Day. Please apply by February 25th. Each year, Dialysis Patient Citizens is excited to host a Congressional Advocacy Day for kidney patients and transplant recipients to meet with their federal legislators and talk about issues that affect their quality of care. Historically, our members have come to Washington, D.C., to meet with their Congressional Members in person. However, we are conducting a virtual "fly-in" in 2022 due to the ongoing Covid-19 pandemic in order to ensure the safety of our participants. We will be hosting our Congressional Advocacy Day [...]

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Health Management Associates Find Minimal Cost to Enacting Jack Reynolds Memorial Medigap Expansion Act

2024-03-29T01:10:12+00:00October 5th, 2021|Categories: Article, Medigap Coverage, News, Promote Financial Security, Take Action|

Updated October 5, 2021 Last week, DPC released a report by Health Management Associates (HMA) detailing the costs associated with the passage of the Jack Reynolds Memorial Medigap Expansion Act (H.R. 1676), which would require insurers to make Medigap plans available to End-Stage Renal Disease (ESRD) patients under the age of 65. Health policy experts often criticize Medigap's relief from cost sharing as adding to Medicare expenditures. However, using Medicare cost data from 2017-2019, HMA estimated that extending Medigap coverage to all ESRD patients under the age of 65 would only add about $50 million in federal expenditures over the [...]

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2021 Annual Survey Last Call!

2024-03-29T01:10:13+00:00August 26th, 2021|Categories: 5-Star Ratings, Access to Transplant, Article, Care Coordination, Charitable Premium Assistance, Dental Coverage, Dialysis Funding, Immunosuppressive Drug Coverage, Innovation, Medicaid, Medicare Advantage, Medigap Coverage, Patient's Voice, Protect Patient Care, Quality Incentive Program, Take Action, Transplant Donor Protection, Transportation Services, Treatment Options|Tags: |

24 hours remain to complete our survey. Make sure to complete your survey for a chance at one of 10 remaining $100 gift certificates. Our 2021 Annual Membership Survey is live, and it will remain open until Friday, August 27. Your feedback helps to shape our public policy agenda and patient education priorities for the next year. This year we ask that both patients and caregivers take our survey. Rest assured your responses will remain completely anonymous. We only share the overall survey results with state and federal level policy makers, so they will better understand your needs, experiences, and [...]

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