Dialysis Patient Citizens News
Open Enrollment Period for Current Medicare Advantage Members
From January 1 – March 31 each year, if you’re enrolled in a Medicare Advantage Plan, you can switch to a different Medicare Advantage Plan or switch to Original Medicare (and join a separate Medicare drug plan) once during this time. If you enrolled in a Medicare Advantage Plan during your Initial Enrollment Period (October 15 – December 7 last year) you can change to another Medicare Advantage Plan or go back to Original Medicare within the first 3 months of 2021. To help kidney patients explore [...]
State Legislatures Introduce Bills that Would Positively Impact Dialysis Patients
With the start of the new year, state legislatures throughout the country are beginning their legislative sessions with a flurry of new bills being introduced on a wide-ranging number of topics. While the Covid-19 pandemic and its economic impact will dominate much of the activity at state houses across the country this year, we are encouraged that some of the bills already filed this session would improve health outcomes for dialysis patients. Both Arizona and Kentucky have already introduced bills to expand Medicare supplemental insurance, or Medigap. This [...]
Recent Healthcare Activity Focuses on Social Determinants of Health
The past two years have seen a flurry of activity aimed at addressing "social determinants of health” (SDOH) that historically get short shrift in the health care system. SDOH refers to the range of social, environmental, and economic factors that can influence health status—conditions that can often have a greater impact on health outcomes than the actual delivery of health services. Last week, the Centers for Medicare & Medicaid Services (CMS) issued guidance to state health officials encouraging strategies in the Medicaid and Children’s Health Insurance Program (CHIP) [...]
Update on Immunosuppressive Medications Bill
I wanted to thank you for your advocacy efforts in support of extending immunosuppressive drug coverage for transplant patients. Earlier this week, President Trump signed into law much needed legislation that will provide kidney transplant recipients with insurance for anti-rejection medications beyond the current 36 months of Medicare coverage currently available to them. This effort was a top priority for DPC when I joined the organization nearly a decade ago, and we continued to press for passage along with the broader kidney community. While our mission is to [...]
Happy Holidays and DPC’s Top Accomplishments for 2020
Dialysis Patient Citizens wants to wish you and your family a Happy Holiday, as well as a safe and healthy New Year. DPC offices will be closed for the holidays starting December 24 through January 1. We also want to take this opportunity to share our list of Top Accomplishments for 2020, which would not have been possible without your support. Thank you again for helping us elevate the dialysis patient voice with policy makers. We are extremely grateful for all of your advocacy efforts, and we [...]
Action Alert – Secure Patient Access to Immunosuppressive Medications
The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act recently passed in the House and has 24 cosponsors in the Senate. This bill was included in a larger legislative package, and we need your help getting this bill passed by contacting your Senators today. This bill was introduced by Representatives Ron Kind (D-WI) and Michael Burgess (R-TX), as well as Senators Bill Cassidy (R-LA) and Dick Durbin (D-IL). This legislation would extend Medicare coverage of immunosuppressive drugs beyond the current limit of 36 months for patients [...]
Action Alert – Increase Access to Care Coordination for Dialysis Patients
The BETTER Kidney Care Act (H.R. 8254/S. 4574) is gaining support in Congress. The bill has 72 cosponsors in the House and three cosponsors in the Senate. Please help us get this bill passed by contacting your Members of Congress today. The BETTER Kidney Care Act (H.R. 8254/S. 4574) was introduced by Senators Young (R-IN) and Sinema (D-AZ), along with Representatives Blumenauer (D-OR) and Smith (R-MO). This bill would enhance access to care coordination services for thousands of patients across the United States currently living with End-Stage Renal Disease [...]
In Rejecting Prop 23, California Voters Protect Patient Access to Care
California voters overwhelmingly opposed Proposition 23, a statewide measure that threatened dialysis patient access to care. It was the second ballot measure in California proposed by a labor union in the last two years and the second resounding defeat for the union, and this time by an even wider margin than in 2018. DPC was part of a broad and diverse coalition that included other patient advocacy organizations, dialysis providers and caregivers, and groups representing physicians, nurses, veterans and social justice communities that opposed this harmful measure because it [...]
Dialysis Patient Citizens and Consumers’ Checkbook Introduce Dialysis Plan Choice To Help Patients During Open Enrollment
WASHINGTON, D.C., -- Dialysis Patient Citizens (DPC) today introduced Dialysis Plan Choice, a new online tool designed in collaboration with Consumers' Checkbook for dialysis patients to quickly and easily compare their current Medicare Fee-For-Service plan with the options available to them through Medicare Advantage now that Open Enrollment is underway. "For many dialysis patients, this year marks the first time they will be eligible to enroll in Medicare Advantage plans thanks to the passage of the 21st Century Cures Act in 2016," said DPC Board President Andrew Conkling. "Since this [...]
BETTER Kidney Care Act the Best Move to Defend Patient Access to Care
As the COVD-19 pandemic continues to cause problems for Americans across the country, many people have been concerned about their ability to access the care that they need. Naturally, many patients are worried about where they can turn if they fall ill, and what it could potentially cost them. Being able to see all the necessary care providers is of particular concern for patients like me who have end-stage renal disease (ESRD). ESRD can compromise a patient’s immune system, making us vulnerable to serious health problems even [...]
BETTER Kidney Care Act – Improving Access to Transplants for Kidney Patients
From the moment I was diagnosed with kidney disease, I was fortunate to receive outstanding care and support from my providers. I know that it played a key role in my ability to get a transplant, as I live in an area with one of the longest wait times in the country. In fact, I was encouraged to get listed at multiple locations, ultimately receiving my transplant in another state. Unfortunately, many dialysis patients do not receive this level of coordinated care among their providers. From my [...]
New Research Highlights Need for Coordinated Care Legislation
Despite months of research and progress, it still seems like we learn something new about COVID-19 every day, ranging from how it affects patients with certain pre-existing conditions to new information on the long-term health risks the virus poses to those who contract it. Now, as more information continues to come to light, it is imperative that we use what we do know to help prepare doctors and patients for the challenges that may yet lie ahead. This is especially true for patients with chronic kidney disease [...]
DPC Opposes California Prop 23 which Threatens Patient Access to Care
Voting is already underway in several states, including California which has a statewide ballot initiative concerning dialysis patients. Proposition 23, as it is known, is another proposed ballot initiative by a labor union following a similar ballot dispute in 2018, which was defeated by a wide voter margin. Rather than focus on profit-caps again, this initiative would impose stricter regulations on dialysis clinics. Prop 23 would require a licensed physician (or a nurse practitioner or physician assistant, if an exemption is granted because of the ongoing physician [...]
Mark Your Calendar for our November Patient Ambassador Call
Please join us next month for our upcoming Patient Ambassador call: Post-Election Impact. Please RSVP to let us know you can attend the call. Call Details are below: Date: Tuesday, November 10, 2020 Time: 2:00 PM ET, 1:00 PM CT, 12:00 PM MT, 11:00 AM PT Follow these instructions at the time of the call: Call: 1-877-399-5186 Enter Meeting Code: 269 743 2061 Join Online (optional): https://dialysispatients.adobeconnect.com/advocacy/ Thank you for helping to improve the quality of life for dialysis patients by representing DPC as a leader in your [...]
Expanding Patient Choice Through the BETTER Kidney Care Act
Preserving patient choice is central to a successful treatment plan.
OP-ED: New bill would help improve care for dialysis patients
My daughter’s kidneys failed when she was just 23 years old, marking the beginning of a long and difficult path on dialysis. Her treatments were incredibly straining and gradually weakened her until, about ten years ago, she had to undergo open-heart surgery because of the stress her dialysis treatments put on her circulatory system. Throughout the entire process, though, we were fortunate to work with a great medical team. My daughter’s nephrologist also handles her primary care, and works closely alongside her cardiologist to share information about [...]
Action Alert – Secure Kidney Patient Access to Immunosuppressive Medications
The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act (H.R. 5534, S. 3353) is gaining momentum in Congress. The bill was voted out of the Energy and Commerce Committee, and has over 100 cosponsors in the House and over 20 cosponsors in the Senate. We need you to help us press for passage by contacting your Members of Congress today. This bill was introduced by Representatives Ron Kind (D-WI) and Michael Burgess (R-TX), as well as Senators Bill Cassidy (R-LA) and Dick Durbin (D-IL). This legislation [...]
Change is Hard – Benefits of Care Coordination vs. the Status Quo
For many patients, adjusting to life with kidney disease means change. From new diet restrictions to multiple weekly dialysis treatments, being diagnosed with kidney disease can create a sudden and difficult shift in a person’s daily lifestyle. Unfortunately, for many patients on dialysis these changes are made all the more challenging by a lack of a truly cohesive, coordinated treatment plan. Instead, patients find themselves juggling appointments, medications, and more that force them into duplicative appointments and drive up their health care costs because there is not [...]
New Bill Would Help Struggling Dialysis Patients
By Dortha Pugh-Thompson, DPC Patient Ambassador When my doctor told me I had kidney disease, I wasn’t aware of just how serious it was. Two years later, though, I passed out and woke up in the emergency room, where doctors said I was experiencing both kidney failure and heart failure. Shortly after, I started dialysis. Fortunately, I was able to do in-home dialysis and remain active in my community and my church. Now, even after receiving a transplant, I’ve found my calling as an advocate for dialysis [...]
CMS Announces Penalties and Rewards for Promoting Home Dialysis and Transplants
On September 18, the Centers for Medicare & Medicaid Services (CMS) announced it finalized the End-Stage Renal Disease Treatment Choices (ETC) Model. The ETC Model was a cornerstone of President Trump’s Advancing Kidney Health Executive Order in 2019. It encourages an increased use of home dialysis and kidney transplants in approximately 30 percent of dialysis facilities and nephrology practices and will be implemented on January 1, 2021. CMS estimated reduced expenditures of $23 million over five and a half years, anticipating that providers assigned to the program will be [...]