Dialysis Patient Citizens News
House Introduction of the Living Donor Protection Act
On April 27th, Congressman Jerrold Nadler (D-NY), Congressman Troy Balderson (R-OH), Congresswoman Lisa Blunt Rochester (D-DE), Congressman Jim Costa (D-CA), Congressman John Curtis (R-UT), Congresswoman Diana DeGette (D-CO), Congresswoman Mariannette Miller-Meeks (R-IA), Congressman Gregory F. Murphy, M.D. (R-NC), and joined by Senator Kirsten Gillibrand (D-NY) and Senator Tom Cotton (R-AR), introduced the Living Donor Protection Act to protect the rights of living organ donors. This legislation would prohibit life, disability, and long-term care insurance companies from denying or limiting coverage and from charging higher premiums for living [...]
What Patients Should Know About Medicare’s New Immunosuppressive Drug Benefit
It had always seemed illogical that Medicare coverage for under-65 ESRD patients ends 36 months after a successful kidney transplant. Why would Medicare make a huge investment in a transplant and then stop paying to safeguard the organ from rejection? For this reason, decades ago kidney care advocates sought a new Medicare benefit extending coverage for immunosuppressive drugs. This bill finally became law in December 2020, and is now being implemented by Medicare. While kidney care advocates applauded this development, it’s important to understand that the context [...]
Dialysis Patient Citizens Applauds Kentucky Legislation Expanding Medigap Access
WASHINGTON, D.C. (April 6, 2023) -- Dialysis Patient Citizens (DPC) today applauds the signing of Kentucky bill HB 345, which will ensure access to Medicare Supplement – also called Medigap -- coverage for Kentuckians under 65 living with End-Stage Renal Disease (ESRD) or Amyotrophic Lateral Sclerosis (ALS). This bill received resounding bipartisan support in both the Kentucky Senate, where it passed on a 37-0 vote, and in the Kentucky House of Representatives, which passed the measure on a 91-1 vote. HB 345, which was introduced by Representative Kimberly Poore Moser (R-District 64), allows Commonwealth residents [...]
Reminder – 24 Hours Left to Apply!
Dialysis Patient Citizens (DPC) will host our Annual Congressional Advocacy Day on October 23, 2023. Participants will be selected based on the quality of their applications, legislative priorities, and previous involvement in DPC's advocacy efforts. We will hold a training session ahead of our congressional meeting for those participating, both virtually and in-person, to explain the process and review our current legislative “asks.” The application period is open until March 31, 2023. We just ask that you tell us a little about yourself and why you think you [...]
DPC State Advocacy – March 2023 Update
It has been a busy and productive legislative session for DPC’s state advocacy efforts. Bills impacting dialysis patients have been introduced in multiple state legislatures and in most cases have moved quickly through the legislative process. Improving access to Medigap coverage is a top priority for DPC, and we are thrilled that several states are working to improve Medigap access. Just last week, DPC celebrated Governor Glenn Youngkin's (R) signing of Virginia bills SB 1409 and HB 1640 into law, guaranteeing access to affordable Medigap coverage for thousands [...]
Dialysis Patient Citizens Celebrates Virginia Legislation Guaranteeing Medigap Access
WASHINGTON, D.C. (March 24, 2023) -- Dialysis Patient Citizens (DPC) today celebrates Governor Glenn Youngkin’s (R) signing of Virginia bills SB 1409 and HB 1640 into law, guaranteeing access to affordable Medigap coverage for thousands of Virginians under 65 living with end-stage renal disease (ESRD). Each of these bills, which contain identical language and were passed with nearly unanimous support in both the Virginia Senate and House of Delegates, were spearheaded by House Majority Leader Terry Kilgore (R-1) and Senator George Barker (D-39). These pieces of legislation come [...]
HHS Announces Organ Procurement and Transplantation Network Modernization Initiative
In March, the Health Resources and Services Administration (HRSA), an agency of the U.S. Department of Health and Human Services (HHS), announced a Modernization Initiative to strengthen accountability and transparency in the Organ Procurement and Transplantation Network (OPTN). The initiative includes posting of data dashboards detailing individual transplant center and organ procurement organization performance; improvement of the OPTN IT system; and competitive bidding to manage the OPTN. “Every day, patients and families across the United States rely on the Organ Procurement and Transplantation Network to save the lives [...]
National Kidney Month Reminds Us of the Possibilities of Life on Dialysis
The coming March marks the start of National Kidney Month, a time to promote kidney health, raise awareness of the obstacles facing patients, and advocate for policies that help them as they navigate life with kidney disease. However, National Kidney Month also means so much more. It is an opportunity to spread awareness of the fact that being on dialysis doesn’t mean having to put your life on hold. You can still pursue a career and do the things you love most, whether that’s traveling, camping, or [...]
2023 State Advocacy Kick-Off
It’s been a busy start in 2023 for DPC’s state advocacy efforts. Bills impacting dialysis patients are being introduced in multiple state legislatures and moving quickly through the legislative process. Legislation to expand Medigap access has already been introduced in Hawaii, Indiana, Kentucky, Nebraska, and Virginia. Improving Medigap access is a top policy priority for DPC, and we are pleased that multiple states are considering how they can expand access to Medigap plans, particularly in states that have limited or no access to Medigap for the under-age 65 [...]
Congressional Update
The 118th Congress was sworn in earlier this month. It started off in historic fashion with a protracted fight on the House floor to elect a Speaker of the House, which Kevin McCarthy ultimately achieved on the 15th ballot. With Republicans controlling the House, and Democrats holding the White House and an expanded margin in the Senate, Congress will have to bridge the partisan gap to ensure the government remains open and in possession of its full faith and credit. Healthcare will of course be a major focus [...]
No Escaping Kidney Disease
To the Editor: Life with kidney disease is all I’ve ever known. I was born with this hidden illness and started receiving dialysis treatments at just 25 years old. Over the years, I’ve experienced the various hurdles patients face both as a kidney patient and as someone who is legally blind. Before my kidney transplant in 2018, I did in-center dialysis. As someone who is visually impaired, driving to and from the center wasn’t an option, so I relied on other forms of transportation, which became costly. [...]
Welcome to the Board – Eugene Blankenship
Eugene Blankenship has witnessed the struggles dialysis patients deal with for his entire life. Kidney disease runs in his family, and he lost both his father and grandfather to complications from kidney disease. Eugene was diagnosed with polycystic kidney disease himself while on a camping trip in 2003. Since then, he has devoted himself to helping others affected by kidney disease, first as a DPC patient advocate and now as a member of our Board of Directors. Most patients have limited access to their representatives in Congress, [...]
Welcome to the Board – Terry Peeler
Terry Peeler has devoted his life to public service, working for 25 years as a firefighter paramedic before kidney disease forced him to retire in October 2016. During his career in public service, Terry was appointed as the first African American full-time fire chief and paramedic in Sumter County, Alabama in 2000. He has also held roles as both Sumter County Coroner and Sumter County Sheriff. Having been used to serving others, the adjustment to needing assistance in his own care was a difficult shift. He now [...]
Welcome to the Board – Steve Ahern
Steve has been a dialysis patient for over six years, having battled through heart stents and two bouts of lung cancer. He is honored to be a member of our board, and eager to continue focusing his efforts on making life for dialysis patients as fulfilling as possible. Steve’s battle with kidney disease took many unexpected turns but taught him the importance of perseverance and keeping a positive attitude in difficult times. In 2016 Steve became eligible for a transplant, thinking he’d receive a new kidney within the [...]
Welcome to the Board – Raymond Scott
Raymond has been battling kidney failure for 22 years, and he credits the last eight of those to his home hemodialysis treatments. Raymond has a distinguished career as a dialysis and kidney disease advocate. Since his kidneys failed him at age 29, he has dedicated his life to helping others with kidney disease. In 2016 he was a Celebrity Star Dancer with the National Kidney Foundation’s Arizona Dancing With The Stars. Along with his beloved wife, Analyn, Raymond Co-founded 1in9 Charities, Inc, a nonprofit organization committed to creating [...]
Blankenship: Kidney Patients Need Better Access to Coverage
Learning you have kidney disease can be overwhelming, something I found out myself while camping in 2003. It’s hard for patients to get the information they need about living with kidney disease, and for many patients the costs of treatment are excessive. Starting on dialysis brought with it a lot of changes, one of them being that I had to cut back on my working hours. Kidney disease as a whole can make a person weak, and going through dialysis treatments for several hours multiple times a [...]
Protect Dialysis Patients’ Coverage
I have been on dialysis treatments for almost 13 years due to end-stage renal disease (ESRD). Kidney disease can be a lot to handle with frequent dialysis treatments, doctor's appointments, and medications. On top of the medical responsibilities, I must ensure I have the proper insurance coverage. Initially after my diagnosis, I was fortunate to be covered by my wife’s employer-sponsored insurance. However, after 30 months, I had to switch to Medicare as my primary coverage, with my wife’s plan as my secondary coverage. This was often [...]
Happy Thanksgiving from DPC Board, Staff, and Volunteers!
DPC would like to wish our many patient advocates, family, friends, and healthcare partners a happy Thanksgiving. We are grateful for all of these hard-working individuals and for their dedication to the kidney community as well as their effort to help elevate the patient voice. This year, our patient advocates helped to defeat Proposition 29 in California; they continued to build momentum for Medigap expansion; and they are fighting hard to protect patient choice and access to private health insurance coverage. Here are just a few of [...]
Dialysis patients across America are counting on Congress
In October 2016, kidney disease forced me to start dialysis and retire from my career as a firefighter paramedic. This disease runs in my family, with my brother and mother also suffering. I currently require dialysis treatment three times a week and have to travel 72 miles round trip to the center for five-hour-long treatments. Dialysis costs me both time and money. Transporting myself to the center is costly, but it is my only out-of-pocket expense. My treatments are completely covered through both my private insurance and [...]
Texas dialysis patients under 65 need help getting coverage
I've had a progressive kidney disease for several years and my doctor eventually referred me to a nephrologist to help manage my kidney health. Fifteen months ago I needed to start dialysis and I am fortunate because the treatments have gone very well. I’ve largely been able to get the coverage I need through Medicare and my supplemental Medigap coverage which pays for what Medicare won’t, outside of three medications that Medicare Part B and Part D doesn’t cover.Sadly, for many patients under 65 this isn’t the [...]